My beautiful granddaughter has been diagnosed with portal cavernoma and has bands fitted she is 23 months old no bleeding since seems so rare will she be ok as her liver seems fine
portal cavernoma: My beautiful... - Cavernoma Allianc...
portal cavernoma
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fizzer
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CAUKcommunity16Partner
Hi,
I'm sorry to hear your granddaughter has this condition. Cavernoma Alliance UK is unable to offer any advice to you, we support patients with neurovascular and spinal cavernoma(s). However you may find the Children's Liver Disease Foundation website useful, childliverdisease.org/.
Best wishes,
Angie
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