Continuing saga

[FOXLEW]

Dad discharged from hospital 6th August with permanent catheter fitted discharge papers state a scan and camera in emergency two week appointment to be arranged nothing came

Rang said will look into it

Lots of problems with catheter district nurse came today agrees he need 24/7 healthcare but she can’t arrange it

She can’t touch the catheter it has to be done at the hospital

My daughter phoned the hospital they’ve never heard of him know nothing about him and no appointments arranged at all no scans no camera no consultation

So they have fitted him with a permanent catheter, booted him out of hospital and forgotten all about him , they’ve sent him home hoping he’ll die I guess, you wouldn’t treat a dog this badly

I am going totally mad now I can’t function at all my brain is collapsing I can’t think my stress levels are off the scale

[FredaE]

for goodness sake. what are they playing at? Go back to GP he/she may be able to help.

[Hidden]

If in U.K. I would phone Quality Care Commission and explain things about hospital and district nurses.

Hospital’s can’t discharge with out it being safe to do so with Care in place ... I think it’s strange district nurses will not touch it as befoure discharge am sure that would been addressed .

Quality Care Commission will be able to untangle mess and coordinate community care

[FOXLEW in reply to Hidden]

He has care package carers three times s day spending an average of 7 minutes each time on him it is now not enough

Thank you Jeff I will investigate Quality Care Commission thank his my daughter is helping me with telephone calls my brain has given up all working in any sensible way

[Hidden in reply to FOXLEW]

If one carer for health is deteriorating I was told district nurses have to pick up slack IF they like it or not AS carers are not medically qualified to deal with complex issues

Lot will try recommend nursing care homes TzhAT as been ruled out as far as my dad go’s AS I think it’s just cope out for so called community care

Stick to your guns and phone Qualty Care Commission

[Lynd]

Try to find out about community intervention nurses. I have had to call them out in the middle of the night a few times when having problems with my Husband's catheter.

I also have to take him every three months to have his catheter changed with the Ambulatory Nurse clinic at GP surgery. See if your GP can link you up.

[Hidden]

Hi FOXLEW,

So sorry you've been left in this situation. I don't think there's any more practical advice I could give that hasn't already been given, but just wanted to give a word of support and say that I'm thinking of you in your current dilemma and hope you can quickly find a way through it.

[FOXLEW in reply to Hidden]

Thank you Callendersgal and everyone your support really helps. My daughter and I will get through this one way or another

[SquirrelsHolt]

Wishing you,your daughter and your dear husband a quick resolve to this dilemma you've all been left to deal with.💞

[FOXLEW in reply to SquirrelsHolt]

Thank you so much Squirrel this community saves my sanity

[MAS_Nurse]

Hello Foxlew, so sorry to read that you have had so many problems since your Dad has been discharged from hospital. Also so pleased that you have so much support from our members of this caring community.

Just a few points to consider, did your Dad get a package of care drawn up before he was discharged, because that should have taken place and be action-ed before being discharged from the ward plus a follow up appointment for the Urology team regarding catheter care. Sometimes when a permanent catheter is inserted at the hospital, and there may have been difficulties It can be decided by the medical team that only in a hospital setting can the catheter be changed. Please write everything down and the time frame if possible so you have all the facts to give to the GP (firstly, get them on board with you), then the formal complaint to the hospital board and then onto the Care Quality Commission, Health Service Ombudsman if necessary.

Hope this is resolved quickly so that your Dad receives the quality of care you all deserve.

Best wishes,

MAS Nurse & Moderator.

I have included information below that you may find useful.

Care Quality Commission - Deals with concerns or complaints raised by the public on health and/or social care services. cqc.org.uk Helpline: weekdays - 03000 616161.

Health Service Ombudsman. ombudsman.org.uk Tel: [phone]. Can investigate hardship, injury or injustice caused by NHS who have failed to provide a service if the formal complaint has not been resolved satisfactorily.

[FOXLEW]

Thank you Mas nurse he’s back in A&E today we have been there all day with no one wanting to take any responsibility for the leaking catheter the A&E doctors won’t touch it the nurse won't touch it the doctor says the district nurse should’ve the district nurse said yesterday she won’t touch it it must be the hospital

Finally they have sent him to assessment unit taken bloods and put a cannula in

Still no one will touch the catheter do they are waiting for the urologist to come and he could be ours

I am on my way to Sheffield this weekend so my son and my daughter have taken over

My daughter is very very tenacious and stubborn she and my dad will not be moving until they have got satisfactory resolution including 24/7 nursing care not domiciliary care three times a day in his sheltered accommodation with no wardens and only a pull cord system to assist him

I feel guilty leaving him yet again, but this was prearranged a long time ago and I cannot even think straight anymore

Everyone we have seen today have got the full story of his abandonment no follow ups no investigations so I hope they will take note and get us all the help we desperately need

Dogs are treated better than he has been so once I can think again I will write a full letter and timeline of all that has happened and complain to every quater that has failed him and let him down

[FredaE]

It sounds good to me that you can leave matters in the capable hands of your stubborn and tenacious daughter until you have time to sort yourself out. There are some very good relaxation techniques around which will help you to imitate a very very large rock which is not going to bite anyone but is not going to go away. At least we now know why they are doing nothing. They can smell a legal case because they are all trying to dump it back onto the Urologist. It might be worth your while lookng up as much as you can find about him/her and what his record is. If the others wont touch it it is not usually because they don't want to help but because they don't want to be involved when the crud hits the fan. This will help you to decide what to do next. This where you may find a bit of selective googling about leaky catheters, frequency of, and outcomes of might be useful. if you don't feel confident to do this you need someone else to do it for you. Make sure you and your daughter know how to set about complaining. Do it by the book and they know you mean business. Get yourself back on your feet first and in the mean time take photographs and keep any receipts. Stick all documents in a serious looking file and always go to any interviews or conversations with a friend to act as witness. Often these no- words- spoken but visible signals of your determination are enough to get things moving. Remember that hosptal patients under stress usually simmer down if you get out of the way and give them time so this is how they deal with it in the first instance. Keep at them and good luck.

FredaE

[FOXLEW]

Thank you for your advice and kind words

He is still in hospital the trouble with his catheter was it was blocked and he has an infection and he’s very dehydrated so he’s on a drip and has antibiotics they have moved him last night to an actual ward and still waiting for the care team to come and assess him which because it’s bank holiday is probably very unlikely

My daughter is on her way to the ward now and we are travelling back today

I think now he’s in a ward I can ensure he’s not released until he has a placement