New to this forum

[Angelfish285]

Hi all I found this forum by chance when a friend of mine mentioned problems on the Headway forum. Like my friend I am a carer dealing with a partner that has a brain injury. But he is my official carer as I am disabled and dealing with two neuro conditions. Although I'm the one that is disabled I have to be the problem solver, provider, I have to run the house and do so much even when I'm feeling really ill. It can feel like I'm on a rollercoaster when your dealing with someone who struggles to remember things and will happily argue that he has done it or has told you. His moods swings is just like dealing with jeykl & hyde you never know what your going to get. He can be high, volatile, childish, or quiet and moody. I have lost count of so many times I've felt like I'm following him around switching things off, putting things away.

I don't have any friends or family and the extra help I use to get was stopped when my local council had to make cuts. So I just have to manage and just get on with things.

Angie

[Jennymary]

Angie, you sound like one amazing lady, sorry you and your husband aren't able to access any help through the local authority, are there any carers support groups in your area you could contact, if not maybe a chart with GP and/or either your or your husband's specialist hospital team, if all this fails try Headway as I'm sure they'd be able to give you support, even if it's over the phone, I wish you both well x

[Angelfish285 in reply to Jennymary]

Hi Jenny I'm just normal (well as normal as can be). I use to do a lot of research so during my seven years of my illness and disability I've looked into consultants, hospitals, gps, treatments, support group and so on. My partner is my official carer and he is in a local group. I am housebound if I do go anywhere I am limited on distance and time I can be out. I have spoken to Headway who have helped my partner and I've got him into meetings at a brain injury unit. For me I just have to deal with everything just on a day to day basis. Thank you for your message its appreciated