Expert Explanations on C3G
Purpose of C3G Expert Explanations Feature
• This is a forum for patients and care-partners to learn about specific topics on C3G.
• A team of 5 nephrologists who are expert in C3G will provide explanations to patients on topics such as causes of symptoms, how certain treatments work, what do lab tests tell the health care team, and so forth.
- Dr. Andrew Bomback, Columbia University College of Physicians and Surgeons, New York, New York
- Dr. Christoph Licht, The Hospital for Sick Children, Toronto, ON, Canada
- Dr. Carla Nester, University of Iowa, Iowa City, Iowa
- Dr. Richard Smith, University of Iowa, Iowa City, Iowa
- Dr. Joshua Thurman, University of Colorado Anschutz Medical Center, Aurora, CO.
THIS IS NOT A FORUM TO RECEIVE MEDICAL ADVICE. Only your personal physician can give such guidance.
GUIDELINES FOR PATIENT QUESTIONS
When submitting your questions, by complying with the following guidelines, you will enable us to provide informative answers in a timely way.
• Submit one question per submission
• Questions need to be:
- Related to C3G
- Clearly and concisely phrased. Provide enough information so we don’t have to guess what your point is, but not so much information that the question is hidden. It may help to pose the question in more than one way.
• We cannot entertain questions that ask for medical advice for your or your care-partner’s situation, or answer questions of a medical emergency nature. Rather, Experts will provide medical explanations, as far as possible.
• It will not be possible to request an answer from a specific Expert.
• We will try to answer your question as quickly as possible, but there may be times when answers will be delayed. For those situations, thank you for your patience.
HERE'S HOW IT WILL WORK
• We have created a topic on the C3G Online Community entitled “Expert Explanations”.
• Patient or care-partner submits question as a post on this community under the “Expert Explanations" topic (you'll see the "add topic" button under the text box when writing a post).
- IMPORTANT: Add “Expert Opinion” to the title of your post so we can easily identify it for sending to the Experts.
• NKF forwards question to Experts.
• A consensus answer is assembled by the five C3G Experts (this provides the most robust answer possible).
• The question and consensus answer are posted under the “Expert Explanations" topic so everyone can see them.
• Don’t forget, we are not a Facebook site; you can use any username you want, so you can ask questions anonymously.
• As we gain experience with this feature, we may make changes to the process.
