Have just been contacted by a journalist who wants to write a case study about a BWS child. The article is likely to go into a range of newspapers including the quality papers so would help improve awareness of the syndrome. He is looking for a girl aged around 5 to 7, a newborn child with BWS or perhaps a case study of twins. Unfortunately the deadline is next Monday (19th October). Anyone able to help produce a positive story about BWS please contact me on 01258 817573.
Best wishes
Bob Baker
BWS Support Group Uk
Is it BWS?
Genetic testing
Behaviors/Emotional Needs with BWS
Help...I need advice. 
How reassured are you by UK doctors that frequent scans/bloods is not necessary for the 'low risk' hypomethylation at KvDMR genetic cause?