Got the T to the T : Hey guys, have forgotten to... - Tinnitus UK

Tinnitus UK

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Got the T to the T

Bananakin_Lowground profile image

Hey guys, have forgotten to introduce myself.

well. Dont really know what to say. I got the T.

Got it the first time when I was 19/20 but never really got bothered with it, it was fairly low, it was in my left ear and high pitched. No problems sleeping, no doctors, no meds no nothing, I just habituated and went on with life. That kind of changed some 2 months ago. That blasting firealarm I tell you! My firealarm at home just got crazy and went off for no reason, malfunction or whatever. Before I could stop it, well, MORE tinnitus! the left ear T is now way louder, and I got a new friend on my right ear, which also is in another freq. So now I have Tinnitus in stereo and in different frequenzies.

First weeks was hell. But once I got to my first doctors appointment I got some pills to help calm me down and sleep. that was ca 2 weeks ago. Im doin fairly ok. Some days are shit, some days are ok. Like everybody else with T I miss the silence. I need maskers during the nights and when goin to bed. But atleast I can sleep.

Im calling tinnitus TROLLITUS.. yes. Because it can troll you in so many ways..

Im hopefull that I will eventually learn to habituate. I managed it the first time around, so I should be able to do it now too. I hope. Ive had enough of catastrophic thinking and anxiety and all that crap. It only makes it worse. But it is hard, because I can hear it all the time during the day. A couple of days ago I went to a 2nd doctor that was an ear specialist that also has Tinnitus, so I kind of put my trust in him. Well, he just went on giving me a subscription on ADs (mirtazapine) to sleep better and to help reducing the loudness of T. I got suspicious. Did some digging and reseach and found out that ssri ADs can be directly harmful and worsen T, and also give you alot of other problems. WTF.. well what ever, Im not gonna touch them. Ototoxic crap.

I will just have to live on a day to day basis now and pray and hope for the best.

Thats all from me. Have a nice day and kick some T butt.

/C

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Bananakin_Lowground profile image
Bananakin_Lowground
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16 Replies
KingsHea profile image
KingsHea

Hi. Nice to hear from you and how you are facing up to T. Good luck mate.

Bananakin_Lowground profile image
Bananakin_Lowground in reply to KingsHea

same to you stranger!

Supervision6 profile image
Supervision6

Welcome and keep doing what youre doing!

T realky can be the pits but we got each other and need others with your attitude to stay around and keep tslking ☺️

Bananakin_Lowground profile image
Bananakin_Lowground in reply to Supervision6

Thanks for the reply and I appreciate it. It sure can! It freaking sucks. But we have to atleast TRY do our best to cope.. I just hope that FX-332 research comes along quick and give us all a heavenly sent cure..

Have a nice evening mate

ade-the-pade profile image
ade-the-pade

Hello and welcome.!! Not a nice club to be a member off but hope you get a lot from the forum. i echo your wish forsuccessful research that leads to a cure.

Peace and quiet would be bliss!!!

Ade

Bananakin_Lowground profile image
Bananakin_Lowground in reply to ade-the-pade

Thanks haha I hear you. And its so freaking random. So whats your T like?

ade-the-pade profile image
ade-the-pade

Hi. Left ear has high pitched fluctuating screech with Hyperacusis. Right ear steady monotone high pitched whistle.

Ade

Bananakin_Lowground profile image
Bananakin_Lowground in reply to ade-the-pade

ough, sounds tough. tough ough.. a screech! well, I dont know whats worse. having tones or screeches or hisses.. I have 2 different tones in both ears. highpitched. The tone in my right ear disappears occationally, but the left one is steady. loudness is different from time to time, or thats what I think atleast. Hyperacusis sucks. I have it too.

are you using aids? noise machines? Just looking for advise. I dont really wanna stuff myself with ADs and get weird.

JenMeerkat profile image
JenMeerkat

Hi

Just wanted to let you know that mirtazapine isnt an SSRI it's a different type if antidepressants my doctor says it's the only one not to cause/worsen tinnitus

Regards

Jen

Chilledartist profile image
Chilledartist in reply to JenMeerkat

sorry jen, i was on mirtazapine when all this ear crap started, some docs will admit to it causing T, some wont, hey, theyre still getting paid

JenMeerkat profile image
JenMeerkat in reply to Chilledartist

How long were you on it for and what dose?

I've been on it 7 days for sleep as I cant sleep st all

Regards

Chilledartist profile image
Chilledartist in reply to JenMeerkat

2 months, 10mg i think

Chilledartist profile image
Chilledartist in reply to Chilledartist

iv already told you the safest thing

JenMeerkat profile image
JenMeerkat in reply to Chilledartist

So you took 2 x 5mg tablets then ?

Did you taper or go cold Turkey?

Chilledartist profile image
Chilledartist in reply to JenMeerkat

after 2 months, got up one morning to deafness, tinnitus, really bad balance and disorientation ...stopped taking them right away, done some research only for it to be confirmed about the shear volume of drugs that are "connected" to T, Hyperacusis, Hearing loss....it was staggering...

some will admit to the connection, some wont, they still get paid for handing them out....stay away from ototoxic drugs..or good luck

Chilledartist profile image
Chilledartist in reply to Chilledartist

you talking to me now....done your research???

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