Hello everyone, My name is Graham (age 54) and just been diagnosed with T. Unfortunately, a long long time ago I had an Acoustic Neuroma brain tumour and had this removed but I could no longer hear in my left ear and never will. I had adapted over the many years to listen with 1 but a a couple of weeks ago I started getting a high pitched tone in my good ear. The sound never breaks and is constant, I went to my GP who said my ear was rammed with wax, she referred me to an ENT department where I had the wax sucked out, unfortunately the tone was still present so an ENT consultant examined me. I went for a hearing test in the ENT's audiology and the results were that I had loss of hearing in my 'good ear' when high pitched tones are played.
The consultant said my ear was now free of wax and I had Tinnitus, I have now been given an appointment for an MRI scan in a weeks time. (Must say I am impressed with the NHS service so far).
A week has gone since seeing this consultant and I am at my wit's end. The tone just will not let up, I am a postman and when I'm on delivery I can hear the tone but the noise from traffic masks the high intensity. I dread going home because the tones seems to get louder and as for going to bed... I just cat nap throughout the night, I am taking Amitriptyline 25mg before I go to bed but this doesn't make me sleepy or reduce the tone volume in my head.
I'm googled out on looking for miracle cures and have downloaded endless Apps. I listen to music when in bed but the tone is so loud I struggle to relax. Last night I switched the music off and played pink noise through the mic of the phone, as well as annoying my wife the pink noise did nothing. So, I got up again for the 3rd time and plugged in my ear phones and listened to music. Sleeping with an earphone in was very uncomfortable but I will give it another ago tonight.
Today, I went to my GP and pleaded with her to give me something to reduce the high pitched noise or give me something to knock me out for 8 hours. Sadly, the GP although was genuinely understanding of my desperation, she could not prescribe anything and told me to wait until the ENT consultant had seen my MRI scan and given me an outpatient appointment.
This could be ages and I'm so upset.I feel the world's against me and this unwanted gift given to me is going to ruin the rest of my life.
I have read about Hypnotism. the Titinus Clinic. App sound Therapy, accoustic therapy and so on and if I'm honest I still don't know what I should do.
Is there anyone that has had a similar experience as me and can advise the best APP, sound therapy or anything else that I can try?
Also, once the ENT consultant has seen my scans and if says there is no underlying problem causing the 'T' then what do I do, where do I go from there or do I just suffer for the rest of my life?