Finally got a diagnosis in writing - British Liver Trust

British Liver Trust

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Finally got a diagnosis in writing

Iro1 profile image
Iro1
9 Replies

HiFinally got a diagnosis in plain medical language, not 'on the cusp of cirrhosis' or a broad statement of steatosis.

Liver stiffness of 8.8 kpa Cap of 329...This demonstrates F2 fibrosis and fatty liver disease. Mr R is aware of the lifestyle modifications...to address the quantity of fat situated in his liver.

All true I am now aware.

It also informed me that the fibroscan I had on 05/2019 10.9 kpa CAP 349 was 'suggestive' of F3 and fatty liver disease.

I was shown a laminated piece of paper and there was a mention of 'cirrhosis' in a letter but this is the first time I have actually received proper feedback in medical terms.

All of this happened because I spoke to a 'Hepatology Nurse Specialist' on the phone.

She arranged the fibro, she carried out the fibro, gave me immediate oral feedback and then wrote the letter.

F2 and 329 is not where I want to be; I am referred back to my GP with an ELF test required in 3 years. Note no mention of standard LFTs

The NHS at its best, quick, parsimonious action, that leads to saving me anxiety and the NHS saving money and time on dealing with more serious cases.

The ball is well and truly back in my half now, I intend to kick it out of the stadium!

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Iro1
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9 Replies
Aztec632 profile image
Aztec632

Glad you have the answers. Sounds like you have a plan. This is your chance to reverse the problem. You can do it! Start kicking 😀

Iro1 profile image
Iro1 in reply to Aztec632

It only took 4 years!

Aztec632 profile image
Aztec632 in reply to Iro1

🙈

Spiff profile image
Spiff in reply to Iro1

Really glad you finally have your results now you can tackle head on.May I ask if you have been drinking since 2019 even if occasionally.

I was told I had cirrhosis 2021 no scarring which is not possible. I'm in spain. Decided to stop my weekend wine for 6 months next ultrasound much better ..specialist still said cirrosis.

I paid for fibro scan F1 F2 i stopped wine after Christmas..I want to be clear of fibrosis..I'm determined. Goid luck we can do this.

I thank god I can stop ..I realise some people can't..

Iro1 profile image
Iro1 in reply to Spiff

HiIt is supposed to be NAFLD, have not drunk since November 2018 also stopped making biodiesel, which included being exposed to methanol fumes then as well

Iro1 profile image
Iro1 in reply to Spiff

'Told' do you have it in writing.Nurse last week said you do not have cirrhosis and never had had.

Consultant in 2019 wrote 'not happy with diagnosis, really he is on the cusp of cirrhosis'

If they thought I had cirrhosis the specialist nurse said I would have been sent for biopsy and then put on 6 month monitoring.

US shiny, but as smooth as a babys bottom

All very confusing, but now I have something written down in actual medical terms F3 F2 not 'cusp!!!!!'

Makes you think the Consultant's first degree was in English Literature!

Aztec632 profile image
Aztec632

Just read your previous posts. Did you get the pneumonia jab?

Iro1 profile image
Iro1 in reply to Aztec632

Yes, thank you

Rbbooks profile image
Rbbooks

Glad you have a definite diagnosis to work with IRO. I know how difficult it is to keep guessing where you stand.

Randolph

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