AIH/PBC - Result of MRI - Update

[caroldeb1967]

UPDATE 9.8.2021

MRI showed fatty areas on liver. Gallbladder is contracted. Consultants says no issues. If that's the case, why mention the gallbladder being contracted. I have researched and found that being contracted would be classed as okay in the morning, but I had my scan at 5.20 in the evening. I have experienced stabbing pains in the liver area and pain in the bottom of my neck, top of back, both of which are symptoms of "contracted gallbladder".

I know it's good news that no tumours found, but can't seem to get answers in relation to the pain I experience and thought that maybe the gallbladder being contracted would be the answer, but still none the wiser and still in pain.

Also no information provided in relation to why I have fatty areas of the liver.

FROM EARLIER POST - Feeling let down by my consultant.

I was diagnosed with PBC in 2011, had regular appointments until 2014 and then got forgotten, even though I chased up the appointments. In 2017 I developed jaundice and was diagnosed with AIH/PBC overlap and had cirrhosis confirmed at biopsy. I was undergoing 6 monthly ultrasound scans but after a fibroscan in December 2018, my consultant cancelled these, stating that because my fibroscan score was below 10 I didn't need them anymore. 12 months later I had another fibroscan and this was above 10 but just below 12 (I believe this fibroscan result was not accurate, as the one 6 months earlier was 15.7 so a big drop). I, therefore, missed out on 2 ultrasounds but had one a month ago because of the increased reading. I have now been told that there was something showing on the liver, possibly nodules or far sparing, and have just had an MRI. I am scared because I have cirrhosis, I am at risk of liver cancer (HCC).

I also get random stabbing pains in the liver area and when I have mentioned this to my consultant he says "that's nothing to do with your liver". Surely, these pains are a sign/symptom of something to do with my liver.

When initially diagnosed I had the support of a partner, but due to my condition (amongst other things) this relationship deteriorated and we separated. I don't want to burden my children with my concerns until I have a definitive answer and just want to get some outside support.

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Hello,

If you unhappy with the care or explanations you have been given, we would encourage you to discuss further with your GP or liver team. If this is not satisfactory , you can contact Patient Advice and Liaison Service (PALS)

nhs.uk/nhs-services/hospita...

Trust9