Meetings

[Lisa-H_1]

Hi, just thought i'd ask if anyone has had any sessions with someone to help out with cirrhosis diagnosis. Not an AA meeting more a lifestyle change type of thing. Obviously pre Covid or maybe someone has had a zoom meeting? Thanks...

[Jimmywaz]

Hi I’ve been looking for a similar service i have asked my gp and even my consultant and they have just put me on to talking matters which is pointless because they don’t know what they are talking about.I think the best thing to do is maybes stay on here and maybes start one to check in once a week or something to see what everyone is doing and coping with this horrible illness, I think everyone is different regarding lifestyle changes ie age and history, family, job, relationships.

Me myself I kinda had it all good job, wife, really good social life then bang hospital come out lucky to be alive but no job, no wife, no social life, back at parents. Now want old life back but just trying to get as fit as possible turned into a loner but I think I’m happy with that don’t really want to go to busy restaurants on no way I’m going to beer gardens don’t really want to make new friends with people who don’t understand or know about my illness.

Maybes we could ask the admin to try and sort something out like a group chat to check in and out when friends or really down, confused, or positive about what stage we are at? And what we have ate, done, exercise, go anywhere, appointments good and bad, questions, a lot of temptations out there now with lockdown over, how we coping with that?

[Lisa-H_1 in reply to Jimmywaz]

There should be something as it is lonely. Forum good to hear from others.

[AyrshireK]

The British Liver Trust has support groups which are face to face in 'normal times' but currently operating via zoom etc. They have them for individual liver illnesses or general liver support plus pre & post transplant. You find details on the BLT website at:- britishlivertrust.org.uk/in...

Hubby and I attended a couple of face to face before covid that allowed us to meet others with liver disease and chat over various issues plus they brought along guest speakers who covered such things as diet, sleep issues, benefits advice and more.

Katie

[Lisa-H_1 in reply to AyrshireK]

Thank you that’s great to know 👍

[Jimmywaz in reply to Lisa-H_1]

Just applied, thanks be nice to have the funds to set up a retreat location for meetings and activities. Helps being on here, one of my problems with recent relationships is that they do not understand or even comprehend how this effects us, for example I was explaining the severity of my illness to my now ex, ex... I said I might need a liver transplant which she replied well that’s nothing kids have it done, started a massive argument brought up all the past then said I brought it on myself and she tired to help me and I was not the man I used to be which is true but I was nearly dead a year ago anyway I could go on all night. Not really a big talker... but I think we can help each other I think we are all looking for happiness and to furfill our Ives so much now because I have lost so much and just want to be happy again but don’t know what that is, I would like to meet someone maybes but what would you say don’t think many good looking women with good jobs would want to commit for so many years with no job a little bit of money, I used to look after them take them out, holidays, gifts but not now.I’ve got a couple of old friends who I used to drink with they know my situation met up for a soft drink and a bite to eat the other day and it’s just not the same, they are all happy, married, kids and there’s me seriously not well but don’t look it and trying to be happy when they are asking questions about my illness and they asking if I would be comfortable going to a beer garden with loads of people there... can’t be arsed with them now feel like I’m not close to them really at all and they don’t really care they just want happy, funny, naughty, drunk James back feel like they don’t really know me, the only one who does is now my ex ex who I don’t want to talk to now as she has new fella.... Blah blah blah

Ohh and I forgot to mention my ex ex didn’t understand about my he and my quite bad mood swings and confusion and mental state... (bitch!) lol