On NYE of this year, my 75 year old dad was diagnosed with end stage liver disease and liver cancer (after a lifetime of pretty heavy drinking, although he wouldn’t admit it). The diagnosis was obviously quite tough to swallow, as was the prognosis - he was given ‘months vs years’.
Over the past couple of weeks there seem to be bad days and good days with how he’s feeling, but since he had a drain in his stomach (for his asceities) he has deteriorated a fair amount.... he was not able to get out of bed for a couple of days, had no appetite whatsoever and had quite a lot of brain fog.
One thing that we would really appreciate is some advice on what the final stages of this disease really look like. I presume that the eating and appetite gets worse and worse (although this is currently pretty bad and my dad has a lot of nausea), he has pretty low energy (finds it hard to get out of chairs and is a little unsteady on his feet), and as I said, at times he has been a little mentally confused (often in the mornings - i have a theory that he is trying to make sense of his dreams) and has at times struggled to find words. He also sometimes has pain in his liver.
Currently I am at home caring for my dad alongside my mum, but I had two brothers and a sister (along with 3 of my dads grandchildren) who are not around (due to covid risks), and a big worry of ours is that we want to make sure that they are able to spend some time with my dad before he really deteriorates. I know that everyone is different but I would so appreciate some information on what the very final stages of this cruel disease look like, as we really want to make sure that our family are able to be together before that and also just prepare ourselves in the any way possible. We also were wondering if the final stages are usually spent in hospital vs at home (due to covid, my dad is at home but we have a feeling this wouldn’t be the case in normal times).
Thank you in advance.