New person learning

[theoldboiler]

Hello!. I am new to all this and scaring myself silly all the time. I have learned a lot from you already, thank you.

Diagnosed ALD Sept 2019 (Level 4 gross ascites, digestive problems, muscle wastage, exhaustion, confusion) I knew what it was long before but it took others time to catch up. Stomach upset/wind being one of the laughable diagnoses (I had a 9 month pregnant stomach) and the scariest one, ovarian cancer metastatised to my liver which would have meant "bye Wendy"

Already given up drinking but couldn't get treatment until seen by a gastroenterologist. Nightmare. By the time the referral came weeks later was given 6 hospitals, none had any appointments nor could tell me when they would have. I went privately at considerable cost for consultations and tests.

Responded well to Spironolactone (was losing a litre/kilo of fluid a day and the relief was wonderful) It is now creeping back and the latest is that I have some small oesophogeal varices. Beta blockers started today but I have low blood pressure anyway so a bit concerned about that one.

Liver disease. The "Gift that keeps on giving" All my fault though of course and I know I am not as bad as so many others.

Wendy

[Hidden]

Hi and welcome Wendy,

Thank you for sharing your story. We do have a lot of information on our website that may be useful to you, here is a link to our patient guides:

britishlivertrust.org.uk/in...

If you are in the UK we also have a nurse led helpline open Monday to Friday 10am to 3pm on 0800 652 7330

We hope you find our forum a supportive place to visit

Warm wishes

Trust1

[theoldboiler in reply to Hidden]

Thank you Trust1. I have been using your information and forum since last year and have been very grateful for it. Also donated all our Christmas Card money to you this year.

[Hidden in reply to theoldboiler]

Thank you so much for your donation and we are deligted that our information has proved useful. Myself and Kirsty are happy to have a chat on the helpline if needed.

Warm wishes

Trust1/ Rebecca