Speech

[Yuiop]

Hi there, has anyone had problems with speech post liver tx.

Hubby is finding it very difficult to get words out,

[manxonia]

sometimes,i think my brain is effected by the medication.

[GrannyDoll61]

Did he have H.E.? Or maybe its the painkillers? Mention it to the ward staff xxx

[Yuiop in reply to GrannyDoll61]

The pharmacist was in yesterday going over his meds. I said to her. She asked him something and he couldn’t even get one word out. He keeps his words to yes or no with the doctors. Think I might highlight it. Just wondered if anyone else had the same

[AyrshireK in reply to Yuiop]

Definitely highlight this to doctors, something else might be happening.

Hope he is soon on the mend.

Katie

[Yuiop in reply to AyrshireK]

Thanks Katie, it’s beginning to worry me now

[Radnor in reply to Yuiop]

I have no idea about post transplant but as an ME sufferer 'brain fogs' are common. Feeling exhausted in spite of 14 hours sleep affects the energy to speak. I can only imagine how much energy the body requires after such a major operation. I sometimes lose the ability to smile too. Im not feeling miserable and normally I am a chatterbox and smile a lot. I am a lot better now at listening to my body, if I need sleep I dont fight it! The healing going on inside will require a lot of energy. I recall when my Mum had major heart surgery, she didnt have a lot to say. I hope it is just energy related, because in time it will improve a lot Hazelx

[IPCN]

Didn’t notice any problems with speech. Definitely highlight this to medical and nursing staff. Take care x

[jojokarak]

If he suffered with h.e pre transplant then it causes mild brain damage, even 2 years post I have trouble with saying what I want to and if he has just recently had you got to remember he been on some powerful drugs to knock him out and it takes a while for them to wear off and then you got the antirejection tablets on top they are strong drugs with some strange side effects x

[Yuiop in reply to jojokarak]

That’s what I wanted to find out .. if other people have been like this, thank you x

[jojokarak in reply to Yuiop]

No worries my husband has turned into a psychic now he knows what I want to say 😂😂

[Yuiop in reply to jojokarak]

Haha, good job he’s looking after you x

[jojokarak in reply to Yuiop]

Definitely I would be lost without him x (thank god he not on here his head would grow) 😂😘

Just give him a few months and if you're both still concerned just bring it up with the doctors but a lot of the time people go into shock after a transplant it's a lot to take in but at least he on the other side now x

[Yuiop in reply to jojokarak]

It is early days, I will still mention it just for piece of mind x

[Hidden in reply to Yuiop]

Not half! I have really bad trouble find the right whatsits..

No seriously I did before tp and still do. As jojo says I blame HE and the tablets that give you wonderful and sometimes not so wonderful hallucinations.

[Yuiop in reply to Hidden]

Thanks for that info .

[freddie76 in reply to jojokarak]

Hi

My hubby had he but they said some of his symptoms were like parkinsons.they found that having had a defective liver from birth due to a1ad it had caused some brain damage. Just had his last neurological report. Basal ganglia still has deposits in it.but lots of other issues regarding the brain. He is 7 years post tp and has lots of problems with words and communication. Thats what this damn disease can do to you.

[jojokarak in reply to freddie76]

It certainly is a damn disease and no one realises the amount of problems which go hand in hand but at least we are still here fighting x

[Isabelle2 in reply to jojokarak]

Jojo is right. Even my specialist didn’t believe it. Got me to see a neurologist who took one look at brain scan and said it was he. Then they got a second opinion and that neurologist found nothing suspicious! I also found brain damage listed as problem post HE on the best french transplant centre’s website. Apparently I’m a bit better now in that my speech is a bit less slurred but it depends if I’m tired but it’s been 18 months! I also find the muscles on the right side of my mouth tense when I speak and am not 100% relaxed.

[Yuiop in reply to Isabelle2]

He is worse as the day goes on I have noticed. Thank you for sharing info x