Waiting list

[Suzzannecahalky]

How long on average is the waiting list please? Does it depend on how ill you are?

[LAJ123]

Hello,

Hello,

Hope you are well.

You don't say in which country you live, however, if you are in the UK, the best place to find out the facts is from the organisation that coordinates organ donation and transplantation the UK. This is the NHS Blood and Transplant department.

There is a link to their latest annual report on the British Liver Trust website. The answer to your question is to be found on page 20 of the report.

This is the link

nhsbtdbe.blob.core.windows....

Also, here is a link to The British Liver Trust which explains the new system for allocation of livers for transplant.

britishlivertrust.org.uk/ne...

Hope this helps,

Jim

[Suzzannecahalky]

Thanks so very much for your response it’s very helpful. Suzzanne

[Suzzannecahalky]

I am in the uk

[Suzzannecahalky]

Do you know what th ukalid score is ? Thanks suzzanne

[AyrshireK in reply to Suzzannecahalky]

For information about the UKELD score have a look at :- en.wikipedia.org/wiki/Unite...

However under the new allocation system, UKELD is not longer a deciding factor whereas it used to be.

Katie

[Chelle_]

Hi Suzanne, as above from Katie and Jim, it’s different for everyone. I have Cirrhosis of the Liver and portal vein thrombosis, I am with kings Hospital blood type ‘O’ and have been waiting 18 months so far....I hope your ok!

[Suzzannecahalky in reply to Chelle_]

Thanks

[Suzzannecahalky in reply to Chelle_]

Thanks

[Dnama1975]

I waited 3 months for my transplant after I had all the tests and was put on the register but I have a very common blood group and was very ill. I got my new liver on the forth trip into kings for possible transplant. Be ready for a major rollercoaster of emotions ( it turned me into a crying wreck ) if you don't get the transplant the first time you get called into hospital for the surgery. good luck and stay well. wishing you the best. dan

[Suzzannecahalky in reply to Dnama1975]

Thanks

[Suzzannecahalky in reply to Suzzannecahalky]

Thanks just got news from hospital been accepted to go on waiting list

[Danisleigh]

My son is 16 and had a hepatocellular carcinoma and waited 18 days. I was expecting about 3 months realistically so it was a shock!

[Suzzannecahalky in reply to Danisleigh]

Thanks

[Paulwil]

I was on the list at Kings last year and waited 3 months. I was quite well I think at the time. Previously I had a TIPS previously for portal hypertension. Best of luck and I hope your wait is not too much longer

[Suzzannecahalky in reply to Paulwil]

Thanks

[GrannyDoll61]

My husband Is blood type 0 and waited 3 days but he had liver cancer