Caring for my mam

[C-turner5]

Hi, I am looking after my Mam who has autoimmune hepatitis which has resulted in cirosis.

Struggling to get information about what to expect or what help she will need

[AyrshireK]

If you do Facebook there is an excellent AIH support group with over 1000 members who are either AIH patients themselves or like me carers/loved ones of AIH/Cirrhosis patients. My hubby has cirrhosis due to AIH although his auto-immune hepatitis has died out. It;s a closed group on F/B so only group members can see posts. Group has regular get togethers and is supported by some of the top AIH specialists in the UK.

Facebook group is at:- facebook.com/groups/AIHorgUK/

British Liver Trust has a web page with information leaflet on AIH at :- britishlivertrust.org.uk/li...

If you have particular questions then fire away. As I say my hubby has cirrhosis due to AIH, he isn't on any immune suppressants just 5mg Prednisolone a day to keep inflammation at bay. Most of his treatment is now to do with the side effects of having cirrhosis.

Keep posting.

Katie x

[C-turner5 in reply to AyrshireK]

Thank you so much! Will try the FB group x

[Marie1980x in reply to AyrshireK]

In a member of this group very good and extremely helpful xx

[Hidden]

Hi,

Welcome to the forum.

As Katie has kindly already said, The British Liver Trust do have a useful publication on Autoimmune Hepatitis

britishlivertrust.org.uk/li...

It may also be a good idea to find out more about your mum's specific condition from her GP and her liver specialist.

We hope that is helpful,

Warm wishes,

Rebecca

[Marie1980x]

Have they not offered her a transplant x