PSC Partners Seeking a Cure and PSC Support have started an educational campaign about the differences between PSC and PBC.
PSC Partners Seeking a Cure are spearheading this patient-led initiative, with the support of liver health professionals, at the annual conference of the American Association for the Study of Liver Diseases (AASLD), in Boston this week.
The recent renaming of another liver disease - Primary Biliary Cholangitis (PBC), formerly called Primary Biliary Cirrhosis - provided the opportunity to highlight the importance of avoiding confusion identifying these two distinctly different bile duct diseases, PBC and PSC.
The conference, which attracts more than 9,500 hepatologists and other health professionals, will give PSC Partners Seeking a Cure a platform to address the critical issue of misdiagnosing rare diseases.
More information can be found here pscsupport.org.uk/psc-pbc
British Liver Trust team