Lynda

[adlington07]

Does anyone have SANT- Schlerosing Angiomatid Nodular Transformation of the spleen.

[pear-shaped]

Hello Lynda,

My husband has always had an enlarged spleen - there has never been a mention of any medical terms... Does this condition make you very ill?

Pear

[adlington07 in reply to pear-shaped]

Not really- mine is enlarged because of a "lesion" in it they found on scans. It is like a tangle of capillaries and nodules and they think it is benign. It seems to affect my blood count and red cells are smaller than normal so it means that I can get tired or out of breath if I exert myself a lot. Does your husband know why his spleen is enlarged?

[pear-shaped in reply to adlington07]

Gosh it sounds so complicated - can it affect any of the other organs?

A few years ago - previous hospital - they doc there wanted to remove it as he said it was very enlarged - I didn't know much but went on logic and asked - if the spleen has something to do with platelets - then what will do its job if its removed?? The doc didn't mention it again - we found out at the current hospital - that he did right NOT to have it removed - it actually helps the liver...

That's what we were told...

Pear

[adlington07 in reply to pear-shaped]

Ha - yes complicated and SANT is very rare- nothing about it on web except medical journals. Only 40 cases in the world. So far only treatment has been removal of spleen- preventative in case it" ruptures" . Surgeon wants to take it out but I have asked to keep monitoring to see if it gets bigger . Like you and your husband I am loathe to lose an organ which helps the immune system ( and liver) especially as so little is known about condition. Consultants have never heard of it. I don't think it affects other organs but as I said no one seems to know anything about it. How long has your husband had an enlarged spleen?

[pear-shaped in reply to adlington07]

Goodness me... You probably know more about it than the docs...

It's been more that 6 years... Doesn't actually cause any problems but is definitely helping the liver out...

Pear

[adlington07 in reply to pear-shaped]

Thats not difficult Pear- they know nowt ha. Glad your husband has managed to keep spleen for6 years. Hopefully I shall too . Thanks for reply- of to bed now, 6 a.m start x

[pear-shaped in reply to adlington07]

Goodnight Lynda...Take care...