Loss of toe nails

[Surviver]

Hi ladies I haven't posted for a while, I have been on Tamoxifen for 4 years, I have all the symptoms ie sore bones / joints /hot flushes / awful sleepless nights/ I have a new problem 2 toe nails of each foot have fell off strange thing is its the same toes on each foot, has anyone else had this before I go to doctor, I don't have any funoel infections they just fell off 2 in January and 2 last week no blood strange.

[EW03-03]

Hi Surviver.......not my toenails however I have terrible problems with my fingernails. They lift from the flesh, sometimes halfway down the nailbed. And then literally break off. So I have now resorted to Gel nails? Doesn't help with the nail actually lifting from the flesh, just helps so they don't break so short. I worry all the time about the nails actually lifting completely. I don't have any idea why this happens, and no one can give me any answers. I have never had this problem before. Have been on Tamoxifen for 2 years now and am also experiencing the joint/bone pains etc. My nails did become very soft and flakey during the chemo, and so I am not sure whether it's chemo or tamoxifen related. Will be interested to hear if you are told anything different. Good luck

[Surviver in reply to EW03-03]

Thank you , I will let you know how u get on

Take care

Janet x

[SuePS1958]

Hi there surviver, toenails are fine but fingernails are still a bother 3 years after chemo ended. I had Herceptin and am not on any of the hormone depressing medications. My fingernails are like EW03-03 and early on after my treatment it really bothered me a lot. I have always been susceptible to fungal infections across my body, and I wonder if this is what causes the problems with the nails attaching to the nail bed. I have spoken to many medics but no treatment has been offered which succeeded. I've now decided not to fret and leave them be. The worry is not worth it when I am here and living life fully every day. Interested if you find the magic cure. take care x

[carolinenailsea]

I am not on tamoxifen or anything like that but I did lose 9 finger nails and 1 toe nail (looking like a couple more will desert me shortly) following chemo earlier this year. Caroline xx

[ElleeB]

Hi there I am 6 years on Tamoxifen - toe nails are ok but don't grow much or well and I do seem to lost bits ., Finger nails are really rubbish though - they break and nail beds and sides get sore and irritated . Tamoxifen just plays havoc with your body and your sleep patterns are screwed! I too get sore bones and joints / just try and keep fit and active.. and stay positive

[Surviver in reply to ElleeB]

Thank you Ellen it is frustrating the lack of sleep, next year it will be 5 years on tamoxifen May next year I meet with the specialists to discuss another 5 years taking tamoxifen dreading another 5 years of this

Take care

Janet x

[footprints]

Hi ladies, on been on here for a while ,been on tamoxiphen 5 years of stopped taking it for last month I don't know if I should as was advised to take it for 10 years but just wanted to give my body a rest I do get worried and don't know if I'm doing right thing...toe nails are fine but fingernails just split and break have done since I lost them after chemo xx

[redeyes2]

I lost several toenails during chemo treatment. They grew back slowly and crooked. Could your loss still be from chemo? My CA was not hormone related it was protein type, so I have not had to take any anti-hormone pills. The chemo can do it.