Letrozole: I would love to hear from... - My Breast Cancer ...

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Letrozole

moseypowell profile image
9 Replies

I would love to hear from anyone who has come off Letrozole after 5 years on it and how they feel post Letrozole. Do you still have the joint aches and other side affects. Assume I am am not the only one feeling a bit rough on it xx

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moseypowell
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9 Replies
Mandywilson profile image
Mandywilson

Hi... I have been in Letrozole for nearly 7 years .. I might as well tick everything on the list of side effects 🙄😳😂 .. But to be honest I just keep telling myself that it must be doing its job ( hopefully) ... So I put up with it !! I will be on it for another 3 years !! But worth it in the long run ... 💖

Hope you are keeping well xxx

moseypowell profile image
moseypowell in reply toMandywilson

Thank you Mandy.......it helps knowing you are not the only one. Have a very happy Christmas, xx

Debs1962 profile image
Debs1962

I have been on it for 18 months, have aches especially in the morning getting out of bed, the feet! But find it helps to try and get moving, if I sit for too long it's not good when I get up!

I think new guidelines recommended 10 years now, so I assume will be on it for that long now!

Think my hair has got thinner as well! Oh joy of side effects!

moseypowell profile image
moseypowell in reply toDebs1962

Thank you debs, it helps. Merry christmas

Lou_Lou_1962 profile image
Lou_Lou_1962

I am on month 10 and have aching limbs, fatigue and night sweats. Problem is I also suffer from chron's disease and most of the drugs interact, symptoms are the same as well so hard to tell what is causing what. Seasons Greetings one and all. Here's to a Healthier New Year x

moseypowell profile image
moseypowell in reply toLou_Lou_1962

I agree a healthy new year for all of us xx

lovesradio profile image
lovesradio

Hi honey my 5 year anniversary is next year and I think I will be coming off it so will let you know. To be fair I have not suffered much in the way of side effects after 5 previous years on tamoxifen xx

moseypowell profile image
moseypowell in reply tolovesradio

Thank you. Please let me know. Happy Christmas

sugarplum70 profile image
sugarplum70

i am on them for 10 years ,i get ache.s and pains to start with as i have Arthritis Rheumatoid ,so whats new

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