LIVING AFTER LIFE SUPPORT ...MYASTHENIA GRAVI... - Brain health

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LIVING AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS CRISIS

faithhope421 profile image
4 Replies

Hello to everyone , I truly missed you .I am so grateful and blessed to still have life .and to live .To have a heartbeat , respiration without assistance , brainwave activity ,to swallow ,to walk ,to talk ,to have the awesome ability to express heartfelt emotions again .If anyone know what it is like to have a MYASTHENIA GRAVIS CRISIS ,I've felt powerless ,hopeless ,and felt this was my last day of life . Respiratory Failure , accompanied with Neuro Muscular Failure ,a few days on Life Support ,IVIG ,Rituxan ,Plasmapheresis Infusions ,I recovered .I've yet to live another day . Hoping all is well with you . even with your challenges , emotionally , physically , or spiritually , be encouraged , take care of YOU . Our diagnosis sometimes rob us from the freedoms that are freely available to us all . However due to unforeseen complications , we can't always obtain that same freedom . Again I'm grateful , I'm still here , to love , share , care , give and to live . Sending peace , hope , joy and happiness your way , today and everyday .

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4 Replies

hello, i am so sorry to hear you have been through this terrible nightmare and thank god you are safe. i hope the spring and general coming out of the pandemic, life in general getting on this road to recovery will all help to feel hopeful and positive and that we can leave the trauma and fear behind us,, keep safe and thank you so very much for sharing your experience and for caring about the rest of us all struggling together , you are a beacon of courage and kindness lighting our way to our recovery with kind encouraging thoughts and word, you are a precious soul, thank you for helping me, wishing you a speedy recovery, grandmother polly.

faithhope421 profile image
faithhope421 in reply toPollynolongerinagony

thank you .I sincerely needed this encouragement ,I Broke my Right Hand again last night , it was broken pretty bad in 2018 ,The Surgeon had to reset it with Hardware so that I can use it at a bare minimal ,Thank God I'm Left Handed , it will have to be reset again ,which require Surgery .I'm blessed and highly favored in spite of .have a blessed day !

Pollynolongerinagony profile image
Pollynolongerinagony in reply tofaithhope421

oh my goodness! i do hope and pray your will mend soon. you are not just faith and hope, you are also charity, because you give so much of yourself to others, bless you, best wishes grandmother polly. no idea why my typing is underscoring as i have not selected it, so sorry

faithhope421 profile image
faithhope421 in reply toPollynolongerinagony

Thank you my Grandmother ,keep me in your prayers ,and keep the faith and favor ,that was freely given to us by grace and mercy .Have a blessed day !

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