Fed up: Not wrote for a while lately... - Brain Aneurysm Su...

Brain Aneurysm Support

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Fed up

Tracy331 profile image
11 Replies

Not wrote for a while lately been so exhausted and I try to continue as though not had aneurism clipping or two strokes so so I feel like I'm contributing to my family and not a waste of space stilll waiting for PIP to make there mind up if I qualify or not getting so depressed as can't even afford to attend my hospital appointments don't qualify for transport from home to hospital sorry all for moaning my head hurts bad today looks like seizures I now get are not under control like I thought xx

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Tracy331 profile image
Tracy331
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11 Replies
Milley2 profile image
Milley2

Ahh bless you that’s awful , dwp are terrible and the system needs re looking at I hope your feeling better soon

I’m new on here and just been diagnosed with a 6 mm aneurism accidentally found I’m still in complete shock

Tracy331 profile image
Tracy331 in reply to Milley2

Thank you we have to keep strong my op wasn't no where near as bad as I thought it's scary but it also gives you peace of mind when it's done I'm here if you ever need to talk x

Milley2 profile image
Milley2 in reply to Tracy331

Thank you , I’m an emotional wreck right now , I am seeing a private consultant this Tuesday , I’m petrified but I just want an answer now as to if they can treat it , I’m only 53 and have 1 son and 2 amazing grandchildren , I keep breaking down and then the next I try forget it , the slightest twinge bothers me , I’m getting sinus problems as well and 2 prolapse c5 and c6 discs in my neck , which is why I had the mri done after months of pestering my Gp to refer me as he refused last dec , I was in pain with my neck and just thought it was my new job , as office based then , and my last resort was a private physio who manipulated my neck , I got worse after that , much worse and now a routine neck scan showed the 2 prolapse discs plus the Annie , I’m worried the Pyscio may have caused something but it’s a grey area , I never have had physio before if he had told me what he intended to do I would have said no , I left and did not rebook , Gp said it was unlikely related to the Annie , but I can’t help but wonder if what he did caused this , does make you think , what a mess I am right now x

Tracy331 profile image
Tracy331 in reply to Milley2

It's scary you're up one minute down the next I came home next day my cut was ear to ear but it's so worth it for peace of mind I have now I'm just learning to live with it differently now I have siezures and extreme fatigue but I'm keep telling myself least I'm still alive I have two more aneurism there keeping a.eye on but I try not to think of anything future wise except just enjoy the here and now and be grateful I'm still here relatively in one piece xxx

Tracy331 profile image
Tracy331 in reply to Tracy331

Alain the actual op isn't any different than any other I have but the beforehand was much worse than reality trust me xx

Milley2 profile image
Milley2 in reply to Tracy331

Depression does not help either I totally understand what you mean , you sound as though the op went well for you which is brilliant news for you x

Tracy331 profile image
Tracy331 in reply to Milley2

It did I have a few issues nothing I'm determined to overcome but thank you for you're support x

Milley2 profile image
Milley2 in reply to Tracy331

And thank you to , tired of thinking about it dam thing ehh x

Tracy331 profile image
Tracy331 in reply to Milley2

That won't go away until after but I'll always listen if you just want someone to hear what you're saying not what they want to hear xx

Milley2 profile image
Milley2 in reply to Tracy331

Thanks , it’s so nice to hear back from same situations ,one min working the next I’m not had to resign from my new job to as I was forgetting things , and I was only there 3.5 weeks was gutted , was a good job , now I’m signed off depression Annie and 2 prolapse discs , unbelievable what life throws back .

I’ll remain positive for Tuesday .

My dads visiting tomorrow , and I know how worried he is bless him he’s 83 , I should be looking after him now he’s looking after me again

Keep onto that pip assesment though I hear they have to fail so many as it’s fine on points I’m sure in your situation that’s not right what they are doing to you appeal it xx

Tracy331 profile image
Tracy331 in reply to Milley2

Yes I've put an appeal and still waiting on new claim it takes forever have a good day with you're dad I private messaged you xx

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