National Hospital for Neurology and Neurosurgery, London - Anyone been?

[MikeMe]

Hi all,

Sorry for posting so many 'sort of related' threads this last couple of days.

Looks like I have been referred to the ‘National Hospital for Neurology and Neurosurgery’ in London (wasn't sure if I'd be referred here as was waiting), and I just wondered if anyone has been to this place, either for MDT meetings, or for treatment?

Really keen on hearing people's opinions if they have, like:

- What were the wait times for your 1st referral appointment like?

- How was the initial meeting / MDT info etc?

- Are you able to ask them questions when needed (I'm new to this, don't know what to expect!)

- If you had surgery (open or endov.), how was the experience & treatment?

Sorry for so many questions, just a bit nervous as have read that it's really important, with aneurysms, to go somewhere for advice & treatment that has a lot of experience with Aneurysms specifically, and does a high volume of treatments.

So, any replies are Sooooo much appreciated!

Thanks in advance,

Mike.

[Joey53]

Hi Mike, hope U R wel +good health, I just had 2 Brain Aneurysm surgeries, I felt very unwell and went to A&E, @chealsea and westeminster hospital, where I'vebeen treating for #eixos, they immediately detected my brain Aneurysm, and quickly transfer me to Charring Cross hospital, where apparently is the best team of Neurology, in regards of this and others conditions in relation to brains injuries, I've admitted directly to Intensive care, waiting for the Surgeon be available, and being monitoring each hour, eventually after +-1 day they done the first surgery, it's a extremely Delicately condition /Procedures, if U have any good network of family and friends, this is the time to Really get all supports U could get! Don't want worries U,but try to gets as much as U could, well Informed of the; nature's of your injury, also very important; "the consequences /sequels that's can occurs, on my case, I went /still being True this very Painfully process ; Surgery and slowly +Painfully recovering alone! I've been trying to get support from "headway.organisation,however the only support that's I really been having is true this lifesaver community, if you at any time needs my supports at any time 24/7,please don't hesitate, we really need to support each other! If you also know any Therapy supports groups please shares with me; phone/address. ..good luck, and have faith!

God bless you and grantes serenity and positives thoughts.

[Tracy331 in reply to Joey53]

Sorry you're dealing with this alone you can always message me for chat or support I'm 6wk after op so still can't do much. this community keeps me sane and not alone xx