Unruptured

Annie behind my right eye. Have been advised to leave doctor said one per cent chance of rupturing. Because of location and size he said risk is very low. Anyone out there who have left there's.

Thankyou xx

[ducky9]

Hi Mikey...im pretty much the same...anuerysm is affecting my eyes but very slim chance of rupture so between myself and my specialists a decision was reached to leave things as they are. I have been left with double vision which has been difficult to deal with but the anuerysm has probably been there since birth so apart from chronic fatigue and some blinding migraines it doesn't give me too much trouble. Kind regards Lynne

[Hidden in reply to ducky9]

Thankyou for reply, specialist said he assures me he wont see me again. For me it's early days and believing my specialist and trusting what he says is true.

How long have you had yours and do you have it monitored.

[ducky9 in reply to Hidden]

I first found out around 2 years ago...the first 12 months I was "observed" I get mri checked now annually as routine but the neuro assures me I should be fine as my anuerysm is sitting near a cavernous area of the brain which is a safer spot should it decide to "pop!" Than some other areas of the brain. I used to worry every time I has an headache but I don't really stress about it anymore as much. Try not to worry...my doc says lots of people walk round unbeknown they have an anuerysm. I'm only 44 a non smoker and healthy eater so I'm not the most obvious candidate for a brain Ann he says. Hope this helps a little.

[Hidden in reply to ducky9]

Thankyou for replying to me😊 You are right so many people out there like us. It's going to take a while but I'm hoping it will just all go to the back of my mind. Do you keep strict diet and watch your blood pressure and will you be screened regularly my specialist said he did not want to see me again. Do you think I should push for regular mri.

Thankyou Pam x

[Hidden in reply to ducky9]

Hello sorry taken so long to get back to you. As you correctly said about been monitored .......thankfully I will be😊

How have you coped these past few yrs and has yours grown and if you don't mind me asking how old are you.

I'm still having trouble believing what the consultant said about a one per cent chance of rupture. Do you watch your diet and do you exercise ? Like walking or swimming. Do you believe we can go without surgery ever? Lots to ask you.

Hope your well and many thanks

Pam xx

[Hidden in reply to ducky9]

Hi,

Just wanting to know how are you? Are you keeping well 😊

[ducky9]

I'm very surprised the consultant said that to you. I assumed everyone was monitored like me. My consultant said most cases when an anuerysm is discovered usually in an incidental finding they assess it's severity and use a "watch and wait " method the first 12 months if it's not considered an anuerysm that's too large or looks ready to rupture. After 12 months you then are asked to return for regular check ups and indeed future mri screenings. They do this to check the Ann hasn't grown or further weaknesses haven't developed causing more Anns to form. I would most definately ask that they take this a little more seriously. Makes me so mad when people say "ah it's just an aneurysm" like it's nothing. It's most definitely not something you can just accept and move on from. Psychologically it's like having a ticking time bomb in your head for starters. Then depending on its location there's a million and one things the growing pulsating anuerysm can affect...mines my vision as it's sat in between my optic nerves. Many anuerysms sit close to the pituitary gland so all manner of problems can arise if the anuerysm starts pressing into that. Though they assure me mines a few mm away from the pit gland yet im constantly cold, im emotional, always tired, mood swings, the list goes on. How did you come about finding out about yours. It could be that your anuerysm don't affect you in any way. Mine affected my vision, blinding migraines I suffer terrible chronic fatigue also. Hadn't felt right in about 6 years and only by keep going back and forth to see doctor after doctor. Every test kept coming back as I was fine but I knew something wasn't right, couldn't pin point what it was but I just felt spaced out/disorientated and so so exhausted. Still do...today im having a bad day, spent most of it in bed feels like there's a merry go round in my frontal lobe and a pneumatic drill behind. No idea what makes me have days like this. It's terribly depressing and isolating as I can't control days like these. Anyhow im going off the point apologies. I changed my diet a little tried to cut out the rubbish, I drink less, try to keep my stress levels down and I go the gym when I can. My consultant advised I should never smoke (which I never have) and advised me to give up running which I used to do but apart from that didn't advise anything else. I really do think you should get a second opinion though on why they are not wanting to see you again. A brain anuerysm is a serious medical diagnosis and needs to be monitored (however small) im sure.

Regards

Lynne x

[Hidden in reply to ducky9]

Ps Mine was a chance finding I had trouble walking and they found two slip discs and then decided I should gave mri if brain. Sometimes I wish I never knew.

[Jacacr]

Can I ask, are you NHS? ..... Mine was discovered 'by accident' MRI for something unrelated, they found 4-5mm annie behind right eye, which was causing no probs, however I luckily had private medical insurance from work and it seems docs have a different approach here! I was told .5% chance of rupture but could not assure me that it wouldnt rupure tomorrow! and I could opt to have it coiled/stented or even clipped with a 6-8% chance of stroke during or after op! I dont feel that they were trying to get me to have op, on the contrary I was nearly talked out of it by the surgeon who does clipping, saying that it is NOT an immediately threat, and he knew of many studies where peoples annies never ruptured, and he advised clipping would not really be suitable for me. However I came to the conclusion that my life would never be the same unless I had it coiled as I was worried constantly about any little pain, or exertion and limited myself on what I did, even tho I tried not to! I (two months after diagnosis) had the op done vascularly, in hospital for Neurology and Neuroscien in London, only needed a flow diverting stent, took 2.5hrs to do, I woke up with not so much as a headache, went on holiday to New York and Vegas 7 weeks after! (already booked, was worried about flight but was fine) and havent looked back, (admittidly I do still worry about any slight 'head' thing!) I did have an small incident in hospital on standing with my blood pressure, caused I thing by some bleeding from puncture wound, but all in all very pleased I did it. I realise though that not everyone would sail through it so it is definately worth considering very carefully, but privately, at least I had that option !!