I am almost 7 months in to my 12 month journey. I would like to connect with others on this drug. What I am experiencing is what feels like muscle stiffness around my hips and my legs feel very heavy and sluggish. Has anyone else felt this?
Romosozumab : I am almost 7 months in... - Bone Health and O...
Romosozumab
I'm not on romosozumab as you can see, but I definately get stiffness around my hips like you describe. I'm doing best to excercise daily, just about to head off for half hour walk and same back again. I get so frustrated at my limits, excercise has taken me so far...but I feel static now in my progress. However, reading about others going thro same issues cheers me up in a bizarre way, I think it's cos you feel less alone with it all. Hope everyone has a good day today, it's 3 degrees here ! Jumpers on and off we go!
I took it for 1 yr ending Aug 2024 and I had both bone & muscle pain in my legs & hips & spine. I think it’s just the med doing the work. About 30 days later that pain is gone.
I do Yoga, Pilates & Resistance band exercises.
I took it for 11 months and came off due to side effects that got worse each month. I then tried Actonel, Evista and A Acid in very small doses but they all gave me bad migraine and I couldnt get to see the consultant so, to try and keep the gains I took the 12th Evenity injection (after being off for 4 and half months). I had the heavy lead legs started the second half of the year on Evenity and they have not left me, (still there), the migraines have been terrible (not horrendous when on Evenity) but more since trying all the drugs and the last injection of Evenity continuous migraine for a month and I am now still looking to take a drug to hold on to any gains I might still have. I am very med sensitive so these drugs are a nightmare to me but I already have multiple fractures in my back and dont want any more.
Yes pain was so bad plus I developed high blood pressure and high cholesterol from taking this drug. However I just stopped it which I shouldnt have done and got rebound effect
Hi Doormouse - I am at the same stage as you on Romosozumab and have very stiff knees and my legs feel very leaden. I am also getting quite a lot of joint pain. I hope this helps - I actually found it comforting to read your post, and all the other replies as I thought it was only me!