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Collagen.Any experience of possible connections between collagen supplement and Duputrens Contracture

Bootcamp2 profile image
6 Replies

Taking Bone Balance collagen which published research showing improvement in bone density but have developed Duputrens Contracture. Any experience of this to share?

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Bootcamp2
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6 Replies
fraid profile image
fraid

I don't know about collagen but I do have Dupuytrens contracture in right hand. Don't know why as it's hereditary and I don't know anyone that has it. Went to doc who basically told me to stop fussing but if it got so bad I couldn't put my hand in my pocket, he'd cut a tendon or something. It's not too bad and doesn't bother me atall.

Sch614 profile image
Sch614 in reply tofraid

I hate hearing your doctor told you to stop “complaining”’and the remedy seems so harsh. There are enough obstacles without doctors being dismissive. It is so disappointing.

Fruitandnutcase profile image
Fruitandnutcase in reply tofraid

Gosh, that’s a bit grim. I have had Dupuytrens for a long time. I should have had it penates on and fixed but I did nothing about it when I could have done. I saw a very junior doctor at our local hospital, think it was probably his first week on the ward, he did all the preliminary work and said he would go and get Dr Xhis big chief to come and see me. He appeared a while later most embarrassed and said that Dr X didn’t need to see me. I then got an appointment at an outpost miles away to do the operation, I was very scared to have it done, my son was coming back from abroad to visit at the same time. I know several people who have had the operation done and then redone because the effect didn’t last so I cancelled. Since then I’m sure I read that it is one of those ops the government decided weren't necessary which could well be why your GP wasn’t interested.

I wish I hadn’t been such a wimp when I read an article about someone who went to France for a needle aponeurotomy when my little finger was still not a problem. It is now much worse so it is probably something that is worth doing early. My aunt had it and my mother’s family come from Orkney which would tie in with the other name for Dupuytrens which is the Viking Disease although I have also read that it has nothing to do with vikings.

Not impressed with your GP though.

fraid profile image
fraid in reply toFruitandnutcase

It was actually a consultant when I had BUPA. I had been off work with, can't remember if it was M.E or back op or other bits, so when this occurred I wanted to make sure I was fit for work with no more off time. I guess it depends how much it impinges on your life whether you have an op or not. 🤷‍♀️

Bootcamp2 profile image
Bootcamp2 in reply tofraid

I've had lukewarm response from GP, but have had X ray and subsequent referral to physio . Still waiting for that sppt. Yesterday I saw a recomendation to rub castor oil ( organic is recommended ) to the affected tendons. It was replied to by one or two others who had had success using castor oil. I'll be trying this.My concern is that it will worsen over time so want to nip it in the bud!

fraid profile image
fraid

I 've never done anything to mine and it hasn't got worse after initial showing. It doesn't bother me so I won't bother now after all these years. Thanks though.

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