Getting used to stuff!!: I was just... - Lung Conditions C...

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Getting used to stuff!!

Looseloafers profile image
24 Replies

I was just thinking 🤔 how quickly we get used to things. Last year I could do just about anything I wanted! Now I use a wheelchair & oxygen but do t much think about it just accept this is how it is now! Don’t know how long this will last x

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Looseloafers profile image
Looseloafers
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24 Replies
sassy59 profile image
sassy59

You’re right Looseloafers, we’re quite an adaptable species on the whole. I must say that Pete has struggled at times with not being able to do things but he knows to pace himself now.

Take care xxx😀😘🌈

Looseloafers profile image
Looseloafers in reply to sassy59

Yes I find the best way is to pace myself and have strategic chairs to sit on quickly haha 🤣

Caspiana profile image
Caspiana

Hello Looseloafers , 👋😊

We who are chronically ill are for the most part resilient. We adapt for better and worse. I think there are days we manage really well with new circumstances, and days we don't. It's important to have emotional support as well as physical for those days when it's harder.💓 Please take things slow and take good care of yourself.

Cas xx 🙋

Looseloafers profile image
Looseloafers in reply to Caspiana

Thank you! You too x

2ndtenor profile image
2ndtenor

It is difficult I am a different person from just over a year ago not able to do so much

Looseloafers profile image
Looseloafers in reply to 2ndtenor

Have to keep plugging away! X

Hacienda profile image
Hacienda

Morning Loose, I'm with you there, these past few Months have been Physically & Mentally Exhausting. Oxygen 24/7 now, Trying to find a way to get back to myself, I always have Planned ahead, Now it is planning to make a Cuppa. We shall do it Hun. Stay safe and Think Positive, We are here for each other. Much Love. C. XXX

Looseloafers profile image
Looseloafers in reply to Hacienda

Make the best of it & keep trying 😳xx

Shapphire profile image
Shapphire

Good days and not so good . Keep planning.

Aingeful profile image
Aingeful

I wish I could say that I adapt well,I dont! Lockdown has depressed me so much added to a loss of activity and my old way of life. I have to purposefully tell myself off and remind myself that there are people a lot worse off!

Looseloafers profile image
Looseloafers in reply to Aingeful

Yes lockdown has a lot to answer for but keep trying 😃😃xx

Gladwyn profile image
Gladwyn in reply to Aingeful

I am glad lockdown happened...if it hadn’t I might have been just a statistic now. Think of all the lives we all helped save by staying indoors for a while! I’m ducking for cover now lol!

Aingeful profile image
Aingeful in reply to Gladwyn

My doctor said that some of his patients were enjoying lockdown .We are all different? I am missing my friends badly and the groups etc that I went to. However,I see my family whenever they can manage it. Healthwise I have felt worse since lockdown, probably not got enough going on to take my mind off my ailments! X

Gladwyn profile image
Gladwyn in reply to Aingeful

I’m sorry it has affected you like that. It was easy for me as I’m mainly always on my own with just my husband. I really hope you’ll soon feel better. 💐🍀xx

Izb1 profile image
Izb1

Keep your chin up Looseloafers and stay positive x

Alberta56 profile image
Alberta56

Hi Loose. i know the feeling-been there, done that. It doesn't seem so long ago I was doing pilates (pilates!) I have occasional moments of raging, but why not.

Hope you are soon back in a better place. Best wishes, Alberta

Looseloafers profile image
Looseloafers in reply to Alberta56

It’s the fact that I’m not going to get better and I’m way past a nice cup of tea & a good nights sleep will sort it! that really gets me down sometimes but keep trying I have a lot to be thankful for xx

Alberta56 profile image
Alberta56 in reply to Looseloafers

You sound very brave.

Looseloafers profile image
Looseloafers in reply to Alberta56

Haha 😂 not really just try not to look too far ahead! I’m whistling 😗 in the dark a lot of the time xx

Catnip profile image
Catnip in reply to Looseloafers

This time last year, the hospice doctor said I had "probably less than a year--maybe six months". I don't get far because I need 15 litres O2, hate the wheelchair. Still, we're planning for my June birthday now. Like you, I get really down, but I'm blessed with a circle of wonderful friends and keep up "the act" for them :). Blessings abound.

Looseloafers profile image
Looseloafers in reply to Catnip

Bl***y good for you! Keep going you can do this 🥰🥰🥰

shadow4me profile image
shadow4me

I am just starting my oxygen journey have lived with 89% Sats for over a year I virtually can do nothing I hope the oxygen helps xx

Looseloafers profile image
Looseloafers in reply to shadow4me

It helps me but I still have to pace myself! Chin up & keep going x

Catnip profile image
Catnip in reply to shadow4me

Greetings

The oxygen should help, but you're not going to be doing marathons in the near future. I've had oxygen for maybe 10 years now, in increasing volume and time. It's 5 litres sedentary now, 15 on activities-- but if you are like me, you will need time to get the "order" right: turn up volume and oxygenate, do whatever, sit and relax, turn volume down. I still make a mollock of that... Things get better -- relatively speaking!

Cheers

Catnip

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