New Inhaler

[shadow4me]

There still doesnt seem to be many of us copd patients on the new 3 in 1 Trimbow are they being tight with it ?My specialist hadnt even heard of it and even on the net cant find any reviews

[sassy59]

Not heard of it shadow. Xxx

[2greys]

copdnewstoday.com/2017/08/0...

[sassy59 in reply to 2greys]

Thank you 2greys. Xxx

[Annie31 in reply to 2greys]

That sounds promising!

[Petrie21]

How are you doing on it shadow , is it any better than your old ones ? x

[Smikra]

In the US we have a new 3 in 1 named Trelegy. My doctor gave me free samples to try. He put me on Anoro instead since Trelegy would cost me over $500 a month.

[PMRPete]

healthunlocked.com/blf/post...

[Hacienda]

Will ask my Rehab Nurse this morning, we had done a Refresh course on Inhalers last Friday, She did mention a New one, don't know what it's called .

[Agnes62]

I started on Trimbow on Saturday 2 puffs morning and night finding it’s really helping not coughing as much and not as breathless,one thing I did find was usually I wake up in the morning try to take a breath and my ribs are sore but past 2 mornings when I wake up my ribs aren’t sore,don’t know if this is maybe cause I’m breathing deeper through the night or coughing less but keeping my fingers crossed I continue to feel bit better 🤞

[Hacienda]

I asked my Resp Nurse this Morning, she has Heard of it but said it has not Cleared clinical Trials.

[shadow4me in reply to Hacienda]

It must off passed has they would not be aloud to give us it it has been licensed xx

[Hacienda in reply to shadow4me]

I will tell her on Friday at my next Rehab. I read the link that 2greys put on here.

[2greys in reply to Hacienda]

The article was published in Aug 2017, it was at the top of the page in smaller print.

[nannyx6 in reply to Hacienda]

Dont be fobbed off it has been cleared since last year ask again its good x

[nannyx6]

I have been on it just over a week and its a 3 in one spray which is so much better and i must admit i am finding it great my breathing seems easier and deeper breaths, it was my Resp team put me on it, it has been on the market since last year so is new !! i will let you know in few weeks if it continues to work !! fingers crossed

[lKeith]

shadow4me

Hi, Not heard of this 3in1 inhaler, will raise it with doctor at next visit.

IKeith

[DJstag]

Hi,

I had to ask to go on it, been on trimbow since September, works well for me.

What I am finding out about how the NHS operates is interesting with regards to this.

Each CCG has there own guidelines, for example when i was diagnosed Relvar Elipta was the first choice ICS/LABA for Ipswich and East Suffolk CCG, where as just up the road in West Suffolk CCG its use was restricted to consultant/hospital use only.

Why is this you may ask?

CCG's will go for the most cost effective treatment, Relvar Elipta is the cheapest, however there was concerns over the steroid levels in it, and some CCG's restricted its use because of this giving it a red or brown traffic light rating.

What does this means for new drugs like Trimbow???

Some CCG's already have it as first choice for anyone receiving inhaled triple therapy due to it being the most cost effective (Cheapest option at £45 per month). CCG's will start moving lots of patients onto Trimbow and also the Treiligy Elipta.

Some info for you:

lancsmmg.nhs.uk/download/ne...

cambridgeshireandpeterborou...

ipswichandeastsuffolkccg.nh...

westsuffolkccg.nhs.uk/wp-co...

Hope this helps a bit, any questions feel free to ask.

Regards

Mikey

[tomc]

Hi shadow4me.

I have been on trimbow for about a month and I have to say I do get through the day better Than I used to, however, In the mornings I wake in a lot of pain and very breathless.

The pain is caused by Arthritis and chronic pain.

I was prescribed Trimbow by the COPD nurse in hospital and also by Professor Hill.

In all honesty, it is still early days for me and Trimbow as I seem to be more tired every day.

Are you on Trimbow ? It is better then taking Fostair Tiotropium three in one So far gets a thumbs up from me.

[shadow4me in reply to tomc]

Hi Tomc its hard to say if it has helped although my chest does feel less tight i still am very breathless i am finding i get less throat problems and my voice is not so croaky but im still not sure x

[Fennella02]

I'm due to start Trelegy next month which is the other 3 in 1. My consultant favours powder inhalers hence his preference for this one.

[R1100S1]

Strange

I was prescribed it yesterday to replace the horrid Spiromax. I have Asthma and Bronchietasis

[shadow4me]

I cant say i got worse but cant see much improvment either but i have other problems especially anxiety that seem to affect my breathing x