Hi there i am new here and was looking to chat to others with similar symptoms/diagnosis as me to be able to find out how you all deal with life now.
Back in 2012 i started off with a persistant cough after inhalers and antibiotics not working my breathing started to go and was rushed into hospital in which i was in for 7 weeks, different tests, x rays, ct scans, lung biopsy etc. I was a "mystery" and apparently still am! when i was discharged they was treating it as organising pneumonia. about 2 months later things flared up again. i have been up and down since then mostly in the winter months with infections etc. In Aug last year 2017 my consultant told me i had now developed bronchiectasis and since then my breathing has not been right as in i find it difficult to even walk around the house and do general housework. i also have a little girl who is coming up to 3 years old. I was admitted to hospital start of last month or 10 days for IV antibiotics but breathing has not changed so i am not currently back in for more IV antibiotics :(.
Please can anyone tell me how they deal with home life etc?.......i was self employed running a beauty business from home but feel i need to give this up for now. Do many people work with this condition?
I have been advised to apply for PIP also (like disability allowance) do many of you get awarded this?
SORRY for the long message i am just confused and feel abit lonely regarding this situation.