British Lung Foundation

Pseudomonas

Well just got my results back.... they were long awaited whilst my dr ‘read’ them. I week and a half in fact.

Been told the infection is

Pseudomonas Aeruginosa. I’ve read up it’s a superbug and many antibiotics can’t shift it.

So unhappy that I’ve had to wait.

I’ve been given Ciprofloxacin 500mg 1 twice a day, that I’ve started tonight.

Any advice would gratefully received x

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Oh dear Dawnsunny. Love and sympathy xxx

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Have you had this winter?

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No I haven’t but lots of people have on here so am sure someone will reply xxx

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Hope you feel better soon, take care. Love Bernadette 😳 xxx

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Thing is I don’t actually feel ill, I’m coughing a bit and mucus is darker and a little more than normal.

I have mild Bronchiectasis. I’m sure I’ve read some bad things about this infection but can’t remember details.

I’m worried it’s getting worse tho?? x

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Dawnsunny Pseudomonas is an extremely nasty bug. I have had pneumonia caused by it. A bad dose can be life threatening. Ciprofloxacin is the antibiotic that works with the infection. I have bronchiectasis and I ended up in hospital with the Pseudomonas bug while I had a trachie in. I have been mainly on that med for lung infections since my first attack some 15 or so years ago. I am glad that you do not feel sick but if your temp goes up you seek medical assistance immediately.

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Gosh that’s so very scary, I’m not sure what to do to prevent it getting worse, I have real problems with the breathing exercises and can’t get up mucus ☹️. So atm Ive just started my antibiotics and just praying 😞, I’m so angry at the surgery not taking things serious and making me wait almost a week before giving me the antibiotics I needed.

Would you have started your rescue ones, even if they weren’t the right ones whilst you wait for the results? Just so I know for future infections x

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Dawnsunny yes take the antibiotics that you have on hand if you do not have the cipro. I was like you for many years when I was first diagnosed could not get up mucous. And I have an autoimmune problem so that does not help in my case in terms of infections. These days with the worsening of my bronchiectasis I have too much mucous! So for me it has been ongoing infections. But that may not be the case for you everyone is different. It would be upsetting for you having to wait for the meds. It is a good plan to always to have some on hand. I hope your infection settles quickly for you. Take care. x

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Thank you great advice x

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I had same due to under treated infection.

If had over 6 months difficult to shift it'

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Thanks Janice.

I’m on 6 weeks of cipro to try and deal with it. x

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Hi Dawnsunny,

I have been colonised with pseudo since 1986. When it becomes troublesome I take cipro 750mg twice a day for 14 days. Once it is in there it is usually lurking, even though it doesn’t always show up on the lab plates. Best thing is to make sure that you clear as much mucus as you can out of your lungs to keep the numbers down and take cipro quickly, for at least 14 days as soon as you feel that it is having a party.

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How do you get it littlepom?

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It’s in the atmosphere. so it’s just a matter of bad luck. Loves hot and damp places most so hence likes to settle in our damaged lungs. You can’t pass it on to anyone. There is another hard to shift bug called non tuberculosis mycobacter which is colonising more and more people with damaged lungs and airways in the same way. Luckily I have avoided this so far.

Some people can get it on their skin if they have a wound or skin condition. This is why I avoid jacuzzis like the plague. My GP used to say that they were pseudomonas soup makers!

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Me too lp, saunas, jacussis, steam rooms - no way.

cx

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Hi Dawn

Sorry to hear you have grown pseudo. Pseudomonas can be eradicated but many people are colonised. This isn't as dramatic as it sounds. If colonised it can just lay around dormant and then come out and party, in much the same way as being colonised with haemphillus. It can be a nasty so and so, especially in CF and non CF bronchiectasis.

Cipro is a 'go to' oral antibiotic for pseudo but I would just say watch out for sore tendons. I get tendonitis with Cipro but am lucky enough to be able to do my IVs at home.

Don't despair - hope the Cirpro helps and you feel better soon. I agree I don't feel as unwell often with pseudo as with some other nasties but funnily enough my consultant knew last time straight away because I looked so unwell.

cx

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Good info cofdrop.

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I’m just trying to understand it.... but yes thank you all xx

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It has come as a shock to you Dawn. Please let us know if we haven't explained anything well. It is very important you feel you do understand. It's easier now for us to 'get it', that's because we have muddled through for years and years, well before the internet, but there is no reason now for us not to be clear enough. Please tell us and ask anything you want. If we can't answer we can find out for you and we would all be happy to do so.

The only daft question is the one you don't ask.

cx

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I guess I’m not understanding your first paragraph. Words like colonised, heamphillus CF etc.

But thank you so much for taking the time to explain xx

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Really sorry Dawn but thank you for letting me know so I can attempt to put it right:-)

Heamophylus is short for Haemophylus Influenzae which is a bacteria which we get within the lungs. It is what they call a gram negative bug (which means it has a biofilm around it) which psuedo also has.

CF is cystic fibrosis. (A genetic cause of bronchiectasis). People with CF have bronchiectasis but not all people with bronchiectasis have cystic fibrosis.

There are some bacteria in the lungs which will make you feel ill but once treated with antibiotics the bacteria will be killed.

With pseudomonas, as with heamophilus sometimes these bacteria can be eradicated. Colonised means these bacteria inhabit the lungs permanently but don't always make us feel ill. Sometimes they build up their numbers and then make us feel unwell and need antibiotics.

I am hoping yours is a one off infection.

I hope my feeble attemps at an explanation hasn't confused things more for you, but if so please let us know.

I am not medically qualified, so please if anyone thinks my explanation is in any way incorrect, please correct anything - I'm not that easily offended. You can also speak to the nurses at BLF Dawn.

Best wishes

cx

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That’s what we’re here for. Ask away anytime. Xx

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Just finished a cpurse of coprofloxin after doxy did not work no tests done though. Feeling better but not there yet. I thought i might have aspergillus because i have been cleaning in a bungalow for an older person and the place had 3 years of dust and mould. So not going there again.

Take care hope they work for you

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Thank you, me too x

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So sorry you have a bad infection.. hope the antibiotics work for you.

Take good care xx

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Pseudmonus is a naturally occuring bacteria. It is present in the environmet and we come into contact with it every day. Mostly our bodies deal with this. If you have reduced immunity or a condition like copd it can become a problem in the lung

It is often accuired in hospital through personal ventilation. Some types of this bacteria can be drug resistant. Ciprofloxin is one of a small group of antibiotics thst still control this.

The bacteria can suvive with or without air. And often can be found underneath mucus. Therefore it is important as part of the control to clear any mucus daily.

As you can see many people may well have this and not even know until it flares up. I hope the tablets work and you feel better.

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Thank you x

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Hi. I thought that Cipro was the only oral drug for pseudomonas as l have a heart condition l am not allowed to take this so at present am hospitalised and on infusions and nebulised colomycin. l don’t think there is anything else for me unfortunately so they are having a go at eradicating it. Keeping my fingers crossed.

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Bless you Liberty43, I pray it works and you feel better soon x

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Thank you. There is lots of good advice on here. Always come here if l am concerned about anything.x

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I was diagnosed with pseudomonas aeruginosa and staphlococcus aureus a couple of weeks ago. Prescribed flucloxcicillin 500mg four times a day for seven days. I feel a lot better but am wondering if the bug has gone or not. You would think the dr would ask you to submit another sputum sample, just to make sure its gone. Hardly any sputum now though and cough much less.

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Think I’d take one in anyway 😬x

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Take care dawnsunny. the people on this sight may not have a certificate to say they are qualified but they give advice that you can understand and will help no matter what the situation and if they don't have an answer they will point you in the right direction. It's like a being wrapped in a warm blanket and offered a cup of tea. X

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It certainly is , thank you x

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Don't worry. It all seems very frightening at first but you learn to live with it. I have Bronchiectasis with colonised pseudomonas and I'm now on 3x a week antibiotics (Azithromycin) which keeps it under control pretty well. Can't emphasise enough how important it is to get the mucus up and out (don't swallow it!), otherwise it will become infected. You really need to see a specialist. The average GP surgery is not very knowledgeable about this. A chest physio will show you how to get it up successfully. It can be hard work and it is tiring but well worth the effort. Exercise is good at bringing it nearer the surface to then cough out. Good luck. There is some good advice on this forum and I have needed it and used it in the past.

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Thank you , all the replies have been so supportive.

I do worry about not being able to bring up the mucus and therefore causing more damage.

I’m just waiting for a new referral to my consultants Bronch physios, hope it’s soon! X

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I called my consultant today, just to relay what infection I had, as it’s the first time and a very scary one by all accounts I wanted to check my gp was treating it right. He says it needs ‘eradication therapy ‘ this involves taking cipro for 6 weeks!

He did tell me to stop it straight away if I get any tendinitis in my heel and call him back straight away.

I’m wondering then if I’ll need to have IV ??

Ive also been to register with another Dr, can’t trust the one I’m with to do the right thing and Swiftly.

I pray things go ok x

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Well finished my 6 weeks cipro and took in another sample over a week later to see if it had gone and it’s still there!

What do you think will happen next? I’m seeing the consultant in a couple of weeks .

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