Patiently waiting: I'm new and writing... - Lung Conditions C...

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Patiently waiting

Mez29 profile image
8 Replies

I'm new and writing about my husband who has been diagnosed with mesothelioma.

He has had six cycles of Permatrexed and Cisplatin (not successful ) followed by three cycles of vinobriline again unsuccessful so he has requested to enter a trial . Our oncologist forwarded a referral six weeks ago and we've heard nothing . Has anyone out there requested a trial entry if so how long before you got any kind of acknowledgement . Many thanks and best wishes to all

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Mez29 profile image
Mez29
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8 Replies
MelAidJack profile image
MelAidJack

Sorry I cant help you with your query but just wanted to wish you luck and hope you find the answers you need x

Mez29 profile image
Mez29 in reply to MelAidJack

Hello so pleased that you've acknowledge my plea ,Thank you for your kind thoughts nice to know people still care

Thanks and regards always

Toci profile image
Toci

You must be so worried and I know nothing to help you. You can try the search box (top, right) and try a search for the drugs or the condition.

Mez29 profile image
Mez29 in reply to Toci

Dear Toci thank you for your kind answer and concern

Regards Always

Sounds like the taking mick THIS lady on facebook with good surport group VERY much in know and can tell you who you need to talk to AS she been there and come out other end.

Here is her blog with links emai and am sure will help in your fight for best care treatmeant for your husband.

rayandmave.wordpress.com/pa...

Her names Mavis Nye she just recived (British Citizen Award ) If on facebook linkdin worth the search

Mez29 profile image
Mez29 in reply to

I can't thank you enough for this important information . God Bless

peege profile image
peege

I can only sympathise too and say I've read and heard of success stories with trials. There was a chap on radio 2's Sunday Love Songs this morning telling of his success with a trial after being given months to live. Moved me to tears. X

Mez29 profile image
Mez29 in reply to peege

Hello Peege

I will keep asking about trials as I need to know every avenue has been been tried. Thanks so much for your warm message

Regards Always

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