Travelled up in rush hour to be as asked at Brompton lind ward for 9.30am. On arrival banded, waited and after going to the desk an hr on, told no bed yet and no idea when. Test arranged at twelve so had l know no bed, test time, could of left home later. Not asked to phone ahead on letter.
Tests times were a mess, and one test was not book even though the ward gave me timed form. Was sent up to get an answer after four years by my consultant as hes not sure best way to treat. Left with no answer but a maybe cause. Which means once the letter gets to him, and l get my follow up maybe six month on.....making me with no further meds since june last year. Brompton more acid tablets only. So not impressed with Brompton, complete mess up for start.
staff have no sense of humour in lind ward. One nurse even maked my report sheet as l was rude, when it was a light hearted remark about the seven hours l waited for a jug of water by my bed. Ward sister did not even speak to me about written remark. Always thought there was two sides to a problem.
Best they could leave me with is a suggested connective tissue disease which they will not treat until it gets worse. My consultant may not also as he will have no idea what l really have. so here l am, looking at the internet, into what l can do to treat myself.
Last comment from Brompton, join a gym. Don't sit around. They certainly don't know me. Anyone else feel Brompton is not always the answer even if its meant to be the top place.