Hello there. I wonder if anyone knows of support networks for family members of people with COPD?
My father and I were estranged for a very long time (he's a recluse and a recovered alcoholic). I managed to get him to reconnect with me and over the last year we've been building up our relationship since them. Understandably I think he wanted to get back in touch after the shock of his COPD diagnosis.
He's currently in hospital as he is deteriorating quite quickly. He's reached stage 4 and now relies on me to navigate his care needs. We talk on the phone several times a day. This is all very new to me. I live 250 miles away from my dad in Manchester and spend a lot of time on the phone talking to respiratory nurses, his solicitor, the care navigator etc. I'm finding things emotionally very difficult as I want so much to be able to give him some quality of life in his last few months. He gets very anxious and finds hospital life very difficult. I have so many questions. I don't know how his condition will progress, I don't know how best to support him and when I should go down and be with him and how often (which is difficult also with work commitments), I don't know how to navigate dad's finances sensitively, and sort power or attorney etc. I feel very alone.
Does anyone know of any support groups for family members of people with COPD? Or anyone else I can connect with?
Thank you so much for your help.