Went to another hospital with my son and daughter in law to discuss the transplant plan for my son's AML. The Doctor was describing it all with utter compassion and in a way that was easily understood.
It is such a process that they have to have him as fit as they can but they have to flatten all that is needed to do this? With the past chemo treatments and the fact he has the kit gene, changes the results from him being low risk to high risk now! The UK donor who is a woman is a 10/10 match which is great news so puts the odds in a favourable way. However he then dropped the "BAD NEWS" His liver is a little messed up because of the Chemo so needs treatment to sort that out. If the transplant does not fix him within 12 months he will not have any chance of success and will be on palliative care.
I went with him yesterday for the Liver fix drip which was a bright florescent yellow! Within a few seconds he started to cough and was perspiring a little and said he felt dizzy but thought it may of been the coughing fit? He then said he had an urge to go to the loo urgently. His sweating went away and he started to rub his arms a little and rolled his sleeves up on his shirt to find spots that looked a lot like nettle stings on his arms. It was at the point a nurse came and he showed them. She looked at his back and stomach and they were there too! She called another nurse over and they put a plan in action by stopping the drip and giving him 3 drugs to counter the reaction into his permanent line in his chest. Before our very eyes we saw the spots lighten and pretty much disappear. After a 15 minute wait the reinstated the drip but at a lower rate and it all seemed to be going well except the strange tummy feeling my son had. They told us that the yellow drip was £2000+!
We are now waiting for a date which they hope will be mid January 2016 but he will be locked away for 7 weeks minimum on a specialist ward for transplants. They also have to give the ward 4 names as they will be the only ones allowed near him and anyone else will be able to talk by intercom only if the ward deem it fit to do so. They even have theatre wash rooms before you go in the room Which I fully understand.
I Wish the donor one of the greatest lives that she can have forever, for the chance that my son will have as near normal life he can.