British Lung Foundation
33,684 members41,176 posts

Please help

Please sign this petition to help my friends little granddaughter and others who have this.....100.000 signatures are needed to get this looked at in parliament so if anyone can share this please do....thank you all so much x x

change.org/p/gw-pharmaceuti...

56 Replies
oldestnewest

Have signed. I hope this girl will get the help she needs.

Andy

1 like
Reply

Signed. Every child deserves a chance in life.

Reply

Done Mandy. xx

Reply

Signed hope it works bless her, XX Sally

Reply

Have signed and posted on Facebook x

Reply

signed it

1 like
Reply

Have signed the petition Mandy and hope little Emily gets all the help she needs and deserves. Bless her. xxx

Reply

Signed and posted to faceache!😁 xxxx

Reply

hahaha...lovely x x

1 like
Reply

Signed xx

Reply

Signed. Not on FB so made a small donation.

Reply

Starless im not even aware of any donation i dont think the family have done that but can find out for you x

Reply

Its a donation to change.org I've not seen it before on change but they usually ask for one i think its a new way of getting funding

Reply

Oh thats not something ive seen either but just to let you know its not something the family have set up...........thanks for everyone's help x

Reply

I know it's not the family it's for change.org they can't operate for free and I am more than pleased to help spread the word of this very worthy petition.

Reply

Starless my friend who is the granny of Emily says there is a go fund page for Emily for specialist equipment so im guessing thats what you mean....thank you so much its very generous and she didnt even tell me about that so will join you x x

Reply

Signed and posted on Facebook. X

Reply

Signed & wish Emily & her family all the good luck they deserve. I hope you get enough signatures to enable this wee lamb to start the trial. God bless

Reply

" Signed Mandy...xx

Reply

Thanks megan......that ball exerciser is a killer :) x

1 like
Reply

Signed. Good luck. xx

Reply

done hope it helps

Reply

Signed it. xx

Reply

Signed. But am not on Facebook.

Reply

Thank you Magpuss every signature counts

1 like
Reply

Ok Mandy sure i ll sign it for your

grandchild and all afflicted.

Do hope medical marijuana will reach those who need it and apropriate research advances but equally too people look at existing claims - as those made for copd too.

Reply

Hi hopeup

Emily isnt my granddaughter she is my friends.....thank you

2 likes
Reply

Signed good luck

Reply

I have signed, hope this helps.

Reply

Done x thinking of everyone affected by this. xx

Reply

signed. It seems ridiculous that we supply this medicine to the US but no one can have it here! I hope she gets the medicine. x piggi

Reply
Reply

Thanks stilltrucking........Emily is on a lot of medication so obviously just adding something like that isnt an option as they dont know how it would interact thats why the family are doing the petition so they can start trials

1 like
Reply

I was responding to a post that claimed CBD oil was not available in the UK when in fact it is.

Reply

oh ok your reply came to me...yeah its available for sure

Reply

Its available here to buy it but there is nothing available with the support of the medical professions which is ridiculous but we got 300 signatures yesterday.........

thank you sooooo much x x

1 like
Reply

Signed. Hope that Emily gets all the help she needs xx

Reply

Signed. All the best for Emily.

Reply
Reply

Yeah thats why they want it here too GW dont provide the same way here in the uk thats what the petition is for

1 like
Reply

If clinical trials only started in 2014 it'll be a few years before they market it anywhere. In any case, why would they restrict supply to the US once it's developed? Sativex was developed by them I believe, and is available in the UK . . .

Reply

I have no idea where your trying to go with this...I have no idea of the medical facts with Emily all i know is the family are trying to get the same trials happening here in the uk that they have got going in the USA ......

1 like
Reply

Not going anywhere, just conversing. A little puzzled. What would be the point of running duplicate clinical trials in the US and the UK?

Reply

Because she wants her daughter on it like anyone would

2 likes
Reply

But only as part of a clinical trial?

rdalrymplemd.wordpress.com/...

Quote (June 2015):

'. . . GW Pharmaceuticals, a UK based company, is currently undergoing clinical trials for its cannabis based medication called Epidiolex in the United States. We are all waiting to see, through the filter of science, what families find clearly evident, that cannabis is the hope for a possible cure. . . .'

Reply

If you read the story on Emily you will see how much she is suffering and if they can they want her involved in this treatment as you say they are a UK based company yet doing the trials in the USA and they want them to do them here......

I am sure Emilys parents would be better informed to tell you what it is you need to know ...all im doing is trying to help them get the petition signed

1 like
Reply

Fair enough, but as a matter of possible interest I came across this: aesnet.org/meetings_events/...

Reply

Im really unsure what your asking ...i know they have looked into it a lot and its the reason they want it here but i will pass that on

1 like
Reply

I just said 'fair enough'. No more questions. Added the link because it's got potentially useful details, like the starting dose in the trial -

(98% pure CBD oil, 5 mg/kg/day . . .).

Reply

It must be really hard for them when its on sale here but not under medical supervision..... i cant imagine how hard it must be not to just buy it and give it yourself with all the positive information thats coming from these trails but it is bloody annoying when they are based in the UK and doing their work in the USA

Ive just sent her that but they have already seen it

1 like
Reply

Signed and shared.

Reply

I have signed it Mandy, but not on any social media sites to share it..

Hope it went through ok as I am having problems with this site and my lappy!

take care,

hugs from |Huggs xxx :)

Reply

Thanks honey everyone of them count x

1 like
Reply

job done Mandy xx

Reply

Signed. Good luck with this.

Suzyxxx

Reply

Signed................good luck.:-)

Reply

You may also like...