Last week, I had my fourth heart catheteraization in 6 months. Honestly, I've never had so many tests & been poked & prodded so much in my life. It makes me cranky. This particular day I was dreading. I was worried about too much ... everything worked out.
The doctor is pleasantly surprised ... my lung pressures are down! He found that my condition is much improved ... and they had me do 6 minutes of excerises where I barely became short of breath. My pressures were find and my oxygen levels were pretty steady at 94%
The doctor was excited to fill my husband in with all the good news, and he was happy take me off the transplant list and told me that no new medications were needed. He wants the current medications to work their magic.
Now, I am hoping for more improvements and have noticed some positive changes in the last week. My heart rate has dropped from a resting rate in the high 80's to the hiigh 70's and sometimes even shows at the low 70's when I first wake up.
My breathing is becoming easier ... I still need to restrict my fluid intake to less than 2 liters. ... Oh, i still have moments with the breathing ... like sometimes feeling short of breath ... & i also get frustrated when I can't take a deep breath; But the deep breaths are coming more and more ... which is a treat ... (( that's why its frustrating when I have some hours or a day where the deep breaths don't come so easy! ))
I'm on night time oxygen for sleeping only, but I am feeling much better and getting better sleep at night. My eyesite is returning and my abdomen is shrinking
I have lost another 3 pounds in the last week.
I'm hopeful that I will see a remission ...
I'm not without anxiety and some uncomfortable moments. I still get short of breath and such ...
I still freak out when my oxygen levels drop below 93% ... most often when I lay back or sit still for too long, forget to take a breath for awhile .. my oxygen levels drop to 91 and sometime even down to 89 ... but they bounce back up pretty quickly.
I wonder what it feels like to get to remission with a illness like Pulmonary Hypertension. I'm sure that there are struggles and that it's not easy ... like with any major illness.
Still, I'm lifting light weights, do the lung exercises ... and I am more active and I'm walking at least 6 minutes or more every day.
... and I'm hopeful!