I have just written a post, but lost it somewhere! My husband has pf and Parkinsons. For the past four months his health has deteriorated considerably. He has crippling weakness, sleeps more then he is awake and is getting depressed. He says he thinks he is dying. He is not a bad patient and generally does not complain a lot, but the lack of ability to do ANYTHING is getting to him. He was diagnosed with PD 2008 and pulmonary fibrosis end 2010. He is on portable oxygen as and when, and 15 hour lower dose during the night. Because he has both of these illnesses, it is hard for me to know which of the two is causing the terrible exhaustion/weakness. There seems to be no help out there for the pf, apart from oxygen (and maybe that is how it IS) but the Hospice are brilliant for chat support and therapy such as painting, t'ai chi etc. He was unable to copy with the latter two. They also keep an eye on his progress... or decline and ring me with advice etc. Anyone got clues re the weakness side of things?
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