Some of you read my last post ( healthunlocked.com/blf/post... )and I thank you all again for the support and positive thoughts.
I wanted to share this with you all, I received a phone call from a Dr on the Palliative Care Team, never met him as yet and part of the phone call was about getting my care transferred to the new hospital along with all my other problems, cancer, COPD, Heart Failure, etc.
During the phone call I lost my temper and really took a lot out on this poor Dr, I told him at 57 and having survived 2 different types of cancer, fought through and survived 6 weeks in ICU and being on a breathing machine ( tracheotomy ) for the whole 6 weeks I didn't think my Respiratory Consultant had the right to refuse me the chance of a double transplant now. I ranted and raved about the poor treatment I had received from various consultants at his hospital, I shouted about my 2 GP's and the misdiagnosis that had gone on for 14 months, and I told him he might be from Palliative Care and very good at his job but I wasn't ready to go on the scrap heap and give up just because of 1 consultant refusing any chances of transplants. I told him about getting second opinions and transferring to another hospital, I ranted about my lack of faith and trust in Dr's & so called specialists who had failed to recognise and treat my real problems, but I did end up calming down and offering him my sincere apologies as it wasn't his fault and having not even met with him it was unfair to off load all my anger on him.
So yesterday I get a letter from the Respiratory Consultant, it 's a copy of a letter/request he has sent to a Transplant Consultant at Freeman's asking if I can be considered for going on the list for a double transplant.
New hope, maybe ? It's at least the first step in the right direction so a rant in some ears does change things, add new perspectives and make some people sit up and take note. I'm a long way from getting on any lists yet and there is a good chance I will be refused a place on the list but for now there is new life in me, a reason to keep fighting and a dim spark of a possible light in the dark.
I was so down the other day when I posted, and all your support and prayers might just have given a spark to the flame.
Keep it up folks, you all can work miracles sometimes even if you didn't know it . THANK YOU