I have severe occipital neuralgia (base of skull and back of head), which is due to a flare up of neck problems, which were caused by prolonged and severe cough. I was previously prescribed Gabapentin for this pain, and it did help, but I had to stop taking them as they made my epilepsy worse. This Pregaglin is also to treat epilepsy as well as neuropathic pain (neuralgia), but I am very wary of trying them after my experience of Gabapentin. Reading all the literature about this drug, it mentions so many side effects and it may cause convulsions. When I tried to explain to the doctor, she said that was all I could get and to try it. She then said my 8 minutes were up and showed me the door. I had tried to explain about how important it was to get continuity of care, and that it was well nigh impossible to get the same doctor each time you need to visit. She said, that was too bad and that was the way the system worked, and because there is only one practice on the island I will just have to accept it. I also asked for rescue meds, because the NICE guidelines recommend them. She refused saying that in Scotland it is another organisation called cine or sign (not sure of spelling as she couldn't tell me), and rescue meds are not recommended by them. Does anyone know if this is true.? I am at the end of my tether. I have struggled for 18 months to get proper help, and although I have improved in that time there is not one doctor who I have been able to tell everything that has gone on, because of the time limit. They do not do double appointments. I am disgusted by the way the Health Service is run now. It is all about the doctors, and not the patients. I have always been against private medicine, but I am seriously thinking about looking into it. At least if they are getting paid, they will have to listen to me! I am rambling, because I am really upset. I now feel there is no place to turn to for proper medical help. Thanks. Hugs xx
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