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Respiratory Consultation Today.Mattcass

mattcass profile image
33 Replies

Hi Guys, Big meeting in Edinburgh today and i'm sure they are going to put the transplant on hold again, It seems i got some lung space back from somewhere my last test two weeks ago showed improvement in my lung capacity and there's more to come i will lose two stone by May which will improve my mobility as well. Will keep you updated later this evening.Matt/Fran

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mattcass
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33 Replies
MarieW-F profile image
MarieW-F

Good luck Matt

My next meeting with consultant is in May, hopefully thin enough to be assessed and I would hope to well to go on the list. Well I live in hope.

mattcass profile image
mattcass in reply to MarieW-F

Hi Marie Thank You. Matt

Great news Matt keep up the good work with exercise and diet.

Hoping all goes well today.

Best wishes BC

mattcass profile image
mattcass in reply to

Hi BC Thank You struggling to do anything just now so weak, a bad cough and chest infection last two weeks has taken it;s toll.Matt

in reply to mattcass

Oh hope you get well soon Matt, hope also you are feeling up to the visit today. Take good care BC

Chris3 profile image
Chris3

Hope all goes well for you today. Are you going to Royal in Edinburgh?

mattcass profile image
mattcass in reply to Chris3

Hi Chris, Yes I'm seeing Nik Harani.Matt

Chris3 profile image
Chris3 in reply to mattcass

I see him too. We're in very capable hands. Thinking of you. Chris

mattcass profile image
mattcass in reply to Chris3

Hi Chris, Iv'e read a lot into Nik certainly the top of his field and a very nice man as well.Matt

Chris3 profile image
Chris3 in reply to mattcass

Doesn't beat about the bush but has a good sense of humour. I can hear him laughing!!

MarieW-F profile image
MarieW-F in reply to Chris3

I work for an Edinburgh 'company' and have considered moving up to make the tavelling easier etc (I do work from home a lot and travel with my job). I wasn't aware there was a lung transplant speciality in Scotland. I have been reluctant to move as I want to be treated at Freeman.

Chris3 profile image
Chris3 in reply to MarieW-F

There isn't a lung transplant speciality in Scotland. A team from Newcastle come up to meet prospective patients but I know Edinburgh work closely with Newcastle. I am very happy with the treatment I get. Live dangerously and move north!

mattcass profile image
mattcass in reply to MarieW-F

Hi Marie Scotland does not have a transplant hospital the nearest is in Newecastle it's just the top IPF specialist Nik Hirani is here in Edinburgh,Matt

Good Luck Matt xx

mattcass profile image
mattcass in reply to

Thank You, Matt

Toci profile image
Toci

Thinking of the two of you today. Good luck. xx

mattcass profile image
mattcass in reply to Toci

Hi Toci, Thank You,Matt

Mavary profile image
Mavary

Hi Matt/Fran . I hope you get on ok today. Best wishes. Mavis. X

mattcass profile image
mattcass in reply to Mavary

Hi Mavary, Thank You all went very well see my update.Matt

Positive thoughts flying your way! Do hope today has a good outcome for you both,

Love Wendells xx

sassy59 profile image
sassy59

Thinking of you Matt and Fran too. Losing weight could be of great benefit and I do wish you all the best. Take care. xxxxx

mattcass profile image
mattcass in reply to sassy59

Hi sassy59, Thank You this will be hard I love my food.Matt

chrissyk profile image
chrissyk

hiya mattcass good luck for today . my husband is waiting to see if he going on the active list for a lung trans we have to go in feb for a overnight stay . they think he is in the window for one now . well done to you though for your keepfit n diet .

mattcass profile image
mattcass in reply to chrissyk

Hi chrissy Good luck to your husband in Feb hope it all goes well, The minute my breathing becones a problem on the active list I go.Matt

dall05 profile image
dall05

Hope everything went well MC. Losing weight was definitely the best thing I have done and has made such a difference to what I am able to do. You could try my sit to stand challenge if you like and Fran too. ref: my last post.

You know they say no pain no gain, well all I can say is the pain you cope with you must be gaining a flippin lot.

Your a blinkin hero MC in anyones book.

Tony

mattcass profile image
mattcass in reply to dall05

Hi Tony M8 still as weak as a kitten this chest cold has taken it's toll the minute i'm fit you set the record and will try and break it after i come in from my 4 mile walk i hour in the pool and finish my paper round.Hee-Hee Matt

dall05 profile image
dall05 in reply to mattcass

Ha Ha MC, I've just got in from running a marathon, channel swim and a shift at the local quarry humping boulders around. I'm sure you'll soon catch up though. :)

Seriously though MC get yourself fit first and then give it a go at a steady pace to start with.

Tony

mattcass profile image
mattcass in reply to dall05

Aye right Tony, The bit about the boulders I dont beleive.MC

dall05 profile image
dall05 in reply to mattcass

Ok maybe I exaggerated, they were only pints of Guinness, one in each hand :)

mattcass profile image
mattcass in reply to dall05

I wish I had only two pints Frans fault topping mines up with wine It was good but.Matt

Toci profile image
Toci

Well??????????????

junespoon profile image
junespoon

Hope all goes well for you. X

Lurcherman profile image
Lurcherman

Good on yer Mattcas, what ever you do you're still lapping those on the sofa.

Hope it all goes well for you x

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