I was diagnosed over 20 years ago with sarcoidosis however in the past 6 months I have gone downhill really quickly. I am now on home oxygen and morphine for the cough. My question is I am now going through 6 small tanks and 2 large in 10 days, I am hardly able to walk from my lounge to the kitchen and back without being in breathing distress. I asked for another appointment to access my breathing and was given a blood oxygen test, the blood was taken from my ear, and was told I was 3 point above what they would consider giving me treatment, which would mean I would be on oxygen 15 hours per day, not what I would want. I am however really concerned about the distress I get in after very little exercise. I have to wait until 9/12 to see my consultant and although it might not seem to far away to others it seems like a life time when I am struggling so much to breath
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