Hi all been a member for a while since being diagnosed with COPD last year but have been ill/disabled for many years thanks to a rare genetic connective tissue disorder called Ehlers Danlos Syndrome (EDS) and this is me first post instead of lurking so please be gentle. LOL
OK the situation is that following what should have been a minor op to repair a rotator cuff tear almost exactly a year ago I suffered a very severe post op pneumonia which in turn led to the COPD diagnosis back then. I'm now 60 years old but feels more like 80 following this latest in a long stream of illnesses over the last 20 years or so.
Since then I had been becoming increasingly tired and finding my night and day had swapped over with insomnia at night and daytime sleepiness in the extreme and eventually received a diagnosis of complex sleep apnoea most likely thanks to my EDS adding extra floppiness in the tissues in my airwaves but also an autonomic dysfunction (common in EDS) adding central sleep apnoea's to the obstructive ones.
CPAP is working to reduce the overall numbers back to "normal" i.e. below 5 an hour but my sleep pattern remains the same with my day consisting of a series of 2-3 hour naps that don't ever reach the deep restorative REM sleep so essential to a normal life and I must admit I'm starting to be fearful of my ability to accept yet another limitation to my quality of life.
My question for you all is does anybody else have this sort of problem even using CPAP where they always end up only ever sleeping in 2 - 3 hour chunks rather than ever having a full decent nights sleep?
I think in my case the autonomic system that normally tells the body to go into the deeper stage of sleep after a couple of hours or so and the central sleep apnoea's also down to dysautonomia combine and my brain decides to send a wake up signal to my body instead of telling it it is time to dream, but this is just a guess.
What I want/need to know is anybody else share this problem and/or have a solution to it?
Thanks in advance for any help/ideas that you can come up with.
Peter aka "Sociable"
"Go placidly..be gentle with yourself..strive to be happy"