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Heart valve replacement

Sunlover2009 profile image
41 Replies

How soon after a angiogram can you have aoutic valve replacement no other issues in heart arteries found many thanks

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Sunlover2009 profile image
Sunlover2009
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41 Replies
Ageingfast profile image
Ageingfast

the less time the better.. the surgeons want info as up to date as possible.

I had mine the day before the op, along with the other two tests, shame this can’t be available to all of us. It was one minor benefit of the covid pandemic.

Sooty

Sunlover2009 profile image
Sunlover2009 in reply toAgeingfast

I just seem to be chasing hospitals at the moment,had my angiogram last week as this and a pre op was all the surgeon was waiting for.I just hope it is sorted out soon very stressful,thank you for your reply

Larneybuds profile image
Larneybuds in reply toSunlover2009

You should be able to phone and check where you are on the waitlist. I had my op cancelled 3 times and I then pestered the life out of them. At the hospital I was with it was just called the cardiac surgery waitlist team. Hope you don't have to wait too long xx

Sunlover2009 profile image
Sunlover2009 in reply toLarneybuds

Thank you,may will give that a try x

PadThaiNoodles profile image
PadThaiNoodles

I think there was about a week between mine, but I already had a surgery date when the angiogram was done.

Sunlover2009 profile image
Sunlover2009 in reply toPadThaiNoodles

I was told within 8weeks the end of December just had to have angiogram was fist diagnosed in September,I've signed the consent forms so hopefully not too long

Redfloyd profile image
Redfloyd

I had my angiogram on a Tuesday, was kept in my local hospital before being transferred to Bristol for the AVR the following Tuesday

Sunlover2009 profile image
Sunlover2009 in reply toRedfloyd

How is your recovery

road2ruin profile image
road2ruin

It was five months for me!

Sunlover2009 profile image
Sunlover2009 in reply toroad2ruin

The waiting is just awful

Desktop54 profile image
Desktop54 in reply toroad2ruin

Yep, my Sister In Law had to wait months too

Sunlover2009 profile image
Sunlover2009 in reply toDesktop54

It's hard playing the waiting game

Survivor1952 profile image
Survivor1952

I had 2xPCI and then AVR three weeks later.

Sunlover2009 profile image
Sunlover2009 in reply toSurvivor1952

It's the not knowing I can't take hope all went well with your surgery

Survivor1952 profile image
Survivor1952 in reply toSunlover2009

Absolutely on both counts, I hope all goes well for you and you don't have to wait too long.

My surgery was in June '23, apart from some ongoing medication I'm leading a normal life. The only long term impact is I can get tired easily but that is down to being on a beta-blocker. I do a gym session and parkrun (5km) every week, fitter than I have been for nearly 15 years.

That 3 weeks was from diagnosis to surgery for the AVR! Oh, they did a single bypass as well as a precaution whilst in there.

Lexi72 profile image
Lexi72

Hi Sunlover I had a CT angiogram to check for narrowing of arteries about 4 months ago as one of my pre operative checks for aortic valve surgeryAm still waiting for my operation 5 months after seeing the surgeon. Appreciate that this not quite the same as a normal angiogram. The. Wait may depend on your level of priority on the waiting list and why they concluded a angiogram is necessary . My understanding is that the surgeon will not want to operate until all necessary preoperation checks (including an angiogram where appropriate)are carried out. Take care Lexi71

Sunlover2009 profile image
Sunlover2009 in reply toLexi72

Every health authority is different isn't it,it scared me to death because in September they really stressed how important it is to have the replacement valve I've done nothing but worry ever since then

Gooner1947 profile image
Gooner1947

Four and half months so far for me and still waiting. Even had appointment with TAVI team leader 4 weeks ago. Got another appointment this coming Monday.I have also been diagnosed with Myeloma recently too.

My breathlessness is so bad now. I'm finding e everything so hard. Gradually getting demotivated.

I can't dress or wash, basic things, without getting breathless. Even going to toilet.

No one showing any urgency.

I'm desperate

Sunlover2009 profile image
Sunlover2009 in reply toGooner1947

Oh that's just awful,I hope they help you very soon

Gooner1947 profile image
Gooner1947 in reply toSunlover2009

Thank you

Maydayuk profile image
Maydayuk

If you are severe aortic stenosis they will be aiming to fit you in ASAP. I was a week.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

They told me it was severe in September, came totally out of the blue, was having shortness of breath but I thought it was a age

Maydayuk profile image
Maydayuk in reply toSunlover2009

They work off specific measurements of the valve and the percentage my valve was point 7 of a cm and 30% mine was severe. Severe is 1cm and 30% it's a nhs guide to when they operate. You get this from a echocardigram. Do you know your measurements. Have you had a echo.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

Hi yes I had my echo end of September valve measurements 0.5-0.7 with moderate reguitation systolic murmur 3/6 other valves seem ok and angiogram showed arteries are ok

Maydayuk profile image
Maydayuk in reply toSunlover2009

I guess it just depends on the different health areas that you live. I came under Wolverhampton West mids. My op was in Oct 2024 I saw the surgeon on the 9th op 6 days later.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

Small world I come under Dudley but been referred to New cross hospital ,I saw the surgeon on 27th Dec and have been waiting until last week for the angiogram that he requested asap

Maydayuk profile image
Maydayuk in reply toSunlover2009

I'm from dudley, my op was newcross

Maydayuk profile image
Maydayuk in reply toMaydayuk

My hospital is Russell's Hall. My cardiologist is Dr Huggett.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

Mine is Julian Hobbs,who was your surgeon mine is Patrick Yio think I've spelt it right

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

I had to have all my tests at Russells hall just got to go to New cross for pre op

Maydayuk profile image
Maydayuk in reply toSunlover2009

My surgeon was polish haven't got a clue how to say it. He was lovely. I was in 5 days. I won't lie, I'm only just feeling myself. I have a poor immune system I'm diabetic. I managed to get Pericarditis and fluid around my heart. I'm fine now, antibiotics and a lot of rest. I was doing great for the first five weeks doing 2 mile walks everyday then I started to feel ill. So listen to your body after the op. All the best I hope you get your op soon.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

You have done so well so many other things for you to contend with as well...thank you for your help and I will keep you updated if that's ok

Maydayuk profile image
Maydayuk in reply toSunlover2009

Of course.

Sunlover2009 profile image
Sunlover2009 in reply toMaydayuk

Just to let you know I have my pre op tomorrow

BellaLover profile image
BellaLover

I had severe aortic stenosis, progressed to critical on the angiogram, & had my ohs one month later, in Belfast. That was back in February 2024.

Sunlover2009 profile image
Sunlover2009 in reply toBellaLover

Hope you are fully recovered

john5438 profile image
john5438

I waited about 8 to 12 months, the reason the cardiologist told me was if it went wrong there would be hell to pay! Suppose it was that I was 85 at the time. All went well and am sure you have no need to worry

Sunlover2009 profile image
Sunlover2009

Oh my goodness,are you feeling well now

Carrotcakemad profile image
Carrotcakemad

I had angiography on the 24th January and should have an aortic valve replacement 6 weeks after, which is around the end of March. Because of the last past covid backlog, my scheduled appointment will be a 4 - 8 months waiting. In the meantime, I have to carry on living.

Sunlover2009 profile image
Sunlover2009 in reply toCarrotcakemad

It's a struggle sometimes isn't it,most days I'm totally shattered very frustrating .I hope you are able to have your surgery sooner than later

Carrotcakemad profile image
Carrotcakemad in reply toSunlover2009

Thank you Sunlover2009

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