can someone provide a good news story - British Heart Fou...

British Heart Foundation

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can someone provide a good news story

Blindbeggar83 profile image

got diagnosed with mitral valve regurgitation in December. Since September I’ve noticed I’ve become more and more tired. Echo said mr was mild-moderate. Had a cough since November, not sure if that’s asthma related.

I was reminded a few days ago that my best mates girlfriend died in heart surgery as a result of heart valve disease- that was 4-5 years ago

I know everyone’s different but I’m so worried. I can’t leave my girlfriend behind yet, we have so many dreams to build.

I’m exercising and eating healthy but still feel so tired.

Can someone please tell me alls not lost. You can live a normal long life…. I feel so defeated already!

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10 Replies
Motorman profile image
Motorman

I have valve regurgitation, I was feeling bad fatigue. I saw a new cardiologist. He cut my bisoprolol right down to 1.25mg. Now I feel fine, well almost :-) Just pointing out that common medications can have serious side effects. I am not a doctor, maybe go and see one and ask for a medications review?

Blindbeggar83 profile image
Blindbeggar83 in reply toMotorman

Can I ask How long have you had regurgitation for?

I had mild/moderate regurgitation which gradually went to moderate/severe over ten years, and then to severe over the next ten years. I started showing left ventricular hypertrophy last year and at that point had open heart surgery to repair my mitral valve and replace my aortic valve.

I’m now 16 weeks on, and back to walking the dogs, weightlifting, etc. I’m skipping this winter for skiing, but will be heading to Colorado next winter.

I’m on warfarin and aspirin for the mechanical valve, and bisoprolol for slowing things down a bit, and an SSRI and lamotrigine for major depressive disorder. (I’ve been on the last two for 10 years; the others just from after the surgery.)

Still going to cardiac rehab. They’ve got more gym machines and you get to hang out with people who have been through the same stuff. Good bit of comraderie. About an hour to an hour and a half, twice a week.

Blindbeggar83 profile image
Blindbeggar83 in reply toPadThaiNoodles

That must have been such a worry. Was you given any sort of reassurances?

PadThaiNoodles profile image
PadThaiNoodles in reply toBlindbeggar83

Mine is from degenerative valve disease, so I knew from the start that the end-game would be open heart surgery. Though I did think it would be in 3 - 5 years, not 20.

My sister had to have hers done shortly after I was diagnosed, and she had an excellent outcome, so I wasn't too worried. (To be fair, that in itself is a bit odd as my major depressive disorder is co-morbid with generalised anxiety disorder -- but for whatever reason I don't have much anxiety over health stuff.)

Traveldreams profile image
Traveldreams

YES! I’ll be your good news. Was diagnosed by chance as severe mitral valve regurgitation in December 2022 aged 54. Needed urgent surgery (told within 3 months but actually waited 11 months).

I had my repair op last January. I was in intensive care for 1 day and then five days on a ward. Went back to work part time after 13 weeks and full time (730 to 530) after 4 months.

I returned to foreign travel after 6 months (managed to fit 4 in between July and December even while working full time) and can now walk up to about 10 miles.

Was told peak fitness probably won’t be reached until 2 years post-surgery!

Good luck x

AuntyEdna profile image
AuntyEdna

I have the same condition and find I struggle more when there’s extreme weather especially cold and heat. This I understand is due to the bodies circulation trying to adjust and the heart is affected. Different medication can have an affect as well. Best to talk to someone in the medical profession about it. Take care 😊

Sav100 profile image
Sav100

no one knew I had regurgitation for over 40 years. I was 49 when it was found and 50 when I had surgery.

I’d lead a normal life, had two kids, drank, smoked, most likely did loads of things I shouldn’t have. And no one ever picked up on it at all.

It took a small heart attack for it to be noticed, it was then diagnosed as severe, I came home and had to wait a year before it was replaced, changed my diet, added rehab and gym to my lifestyle, got a new puppy for lots of walking and company. Not going to lie, got tired easy, felt stressed with such a sudden life change. But wouldn’t change anything I’ve been through, I now feel so much better, made new friends that get what I’m going through. Yes I have a scar which am very proud of, I don’t hide it and if asked I explain about hidden heart conditions.

Use what’s happening as a positive, we all have down days, we have all had those feelings, but if you approach with a good mind set, it really does help. Do things when you feel well, so if you want to go out to the pub or dinner, go. Don’t let this stop you living, it will come right In the end. ❤️❤️

Diddy97 profile image
Diddy97

Hi

Just a thought worth considering! Are you on Beta blockers and/or anticoagulants? Side effects of both of these medications can cause extreme tiredness and lethargy.

Hope this helps.

Blindbeggar83 profile image
Blindbeggar83 in reply toDiddy97

Not on Medication for it atm, waiting to see a cardiologist. Have been told it’s mild to moderate though.

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