Microvascular angina

[Milliemoopink]

Hi Not been on for a while after Doctors kept telling me "it's not your heart"

After 10 long months had the mri stress test and got confirmed diagnosis of microvascular angina .

The worst experience ever having procedure to prove it and get the diagnosis .

Happy Tuesday everyone 🙂

[Milkfairy Heart Star]

I agree a cardiac MRI is no fun, I have had three.

After the last one I ended up in A&E, as the sudden rise in my heartrate due to the adenosine triggered my coronary vasospasms.

It's such a relief to get a confirmed diagnosis!

Finally being listened to and believed, your pain is real and not imagined.

[Milliemoopink in reply to Milkfairy]

I have also been diagnosed with functional neurological disorder as well so currently into my 3rd week in hospital with one triggering the other .I was rough during and after the procedure ,glad I didn't know how bad it was going to be before I had it .

Now waiting for ward round to see next steps as medication before didn't work 🙄

[Milkfairy Heart Star in reply to Milliemoopink]

I hope you get a treatment plan that helps manage your symptoms better.

[Milliemoopink in reply to Milkfairy]

Thanks 😊

[Displacedheart]

Well done - I know how hard it is to not be believed - took them 5 years to find out my heart is displaced into my left hemithorax- still won't acknowledge it though- did u have a cpet scan ? I have a cpet scan soon but I would prefer the mri like you've had I just can't afford it.Finally a diagnosis- if ur experience has been anything like mine - u need a holiday to heal or something. Its hard to just move past such a horrific time. Very happy for you that you have answers.

[Sharpglo]

Know that feeling, over 2 years it took until I went into AF and diagnosed with HF. People need to be made aware that at the age of 45 and maybe every 5 years after to have a stress test, calcium heart test, my preference to have would be an echocardiogram. So many symptoms and it seems unknown symptoms by medical professionals.

[Lotsirb]

Hello, Currently typing this with pain in chest, neck and left arm. Also pins and needles in fingers in left hand. Micro Vascular Angina is a real pain (excuse the pun) isn't it. I think one of the biggest frustrations is to be constantly told "It's not your heart" and you leave hospital confused and depressed. Good luck for the future. At least by using this chat line you know you are not alone!

[Milliemoopink in reply to Lotsirb]

Yes been a very hard battle you know your own body and what feels right .in and out 14 times different medications given or just increased then the final mri stress test oh boy glad I didn't know what expect .Starting back up slowly on meds and being monitored as caused a low BP and blackouts and Loc .

Been so helpfull being on here to know of other people's experiences and to offer a listening ear .so thankyou 😀

[Tlc1940]

I has my first episode 20 years ago, they called it Cardiac syndrome X because they couldn't find anything wrong with me. 5 years ago they now call it microvasculat Angina. An episode is very painful and debilitating and l have spent many a day in A&E in even more agony on a drip. So now l ask thise who find me in crisis not to ring 999 just give me myGTN and leave me.So, l commiserate with you and anyone with the disease.

[Milkfairy Heart Star in reply to Tlc1940]

I am really sorry to hear that you are not receiving the care that you are entitled to.I had a specialised angiogram to diagnose my vasospastic angina, I was originally presumed to have microvascular angina.

I have seen over the 12 years of living with vasospastic angina a growing knowledge of microvascular and vasospastic angina.

Microvascular angina is not a benign condition, it increases your chances of having a heart attack, stroke or heart failure.

I suggest you ask your GP to refer you to a Cardiologist who has some understanding of microvascular and vasospastic angina, so you can be offered the appropriate testing and treatment to manage your symptoms.

I also live with a debilitating symptoms too, I know how challenging living with microvascular and vasospastic angina can be. I am admitted to hospital a couple times a year.

I have good support from my Cardiologist, Pain Management and Cardiac Rehab teams.

I hope you are able to access better care in the future.

[Kind51]

Hi Milliemoopink, I'm pleased for you that you have finally got a diagnosis. Thanks for the update. All the best.