Saw cardiologist yesterday in Newport, S.Wales. I have aortic stenosis and he is arranging a coronary angiogram. Is that another term for inserting a Stent?If I have to lay flat it would cause me problems. Can I request calming medication or maybe sit up ?
Coronary angiogram : Saw cardiologist... - British Heart Fou...
Coronary angiogram
An angiogram involves using a remote camera to look at the inside of the blood vessels round your heart. A stent may be inserted at the same time if necessary. I was offered, and took, a sedative which helped me. If you have problems lying down you really need to contact the cardiology department to discuss it before you go.
You and I are the same age. I had aortic stenosis and perhaps you would like to know how well it has gone for me. I had scans every year for five years. At first it was called mild stenosis then it became moderate stenosis then it became severe stenosis, at which time I needed a new aortic valve put in.
The op was amazingly decent. So much better than other hospital stays. I got my own room and staff were in and out and were very pleasant indeed. Went home a week after the op, then it was three months whilst I recovered. It is now four years on and I have no problems at all. I have come in for coffee after crawling on my shed roof to replace the felt. So you can guess I am fully recovered.
Hope this helps you put your situation in place
Sooty
Thank you so much for your reply. Very encouraging indeed. I started to feel a bit breathless about a year ago. Didn't think anything of it really. Just rested, go my breath and carried on.
Even spent this last winter out in The Philippines.
I noticed it a but out there but still didn't think anything of it. More or less to local tuk tuks etc if wanted to go anywhere. Handled the long flights ok too.
But a week or so back in UK I started to feel more breathless.
This was last mid April. Saw my GP and he got the ball rolling which brings me up to the appointment with cardiologist yesterday after all the tests etc.
That's when I found out where I am at and what's planned.
Once again, thank you for your encouraging reply.
I am still dreaming and hoping we can go to our cottage out in Philippines next winter now.
Maybe you are further along the path. Doesn’t matter, it will be done when necessary and not before. A key issue for me was when I started to stumble forwards.
Being our age group we don’t need a replaceable metal valve. The excellent non metallics will see us through our life span.
You might have the option for a TAVi. Much much faster recovery time. But not 100% successful. Might have to revert to open heart surgery (OHS).
Good luck
Sooty
What tests did you have to get your diognosis
Over past few months. Chest xrays, blood tests, ECG's, CTscan, Echocardiogram After all those GP said I have Atrial Fibrillation. Then saw cardiologist last Tuesday and he said after checking everything that I have aortic stenosis and will need coronary angiogram.
Wow you certainly had the full gamit of tests so you didn't have afib at all or is that as well as ?The coronary angiography is not so bad so don't worry about it too much.
Good luck with your aortic valve getting fixed
Dear Gooner 1947
I was 75 when my Aortic stenosis was first discovered, and I had no symptoms whatsoever at that time. Echocardiograms every six months after that with gradual symptomless deterioration, until 3 years ago when it became severe. At that time I did have symptoms, arm pain, modest chest pain with exercise, etc. But it did take 8 years to develop to that extent, and during that time I lived my life totally the same as before.
Open heart surgery in late 2021, at age 82, with tissue valve replacement and triple by-pass at the same time.
I live in Thailand, but my wife is Filipina and we have been to visit her family several times since then. Just a relatively short flight from here, of course, but we have also been back to east coast of USA without any problem. I am planning to go again shortly, and it is not my health that might dissuade me from doing it, but the cost.
However, if you do decide to go to Philippines either soon, if immediate treatment is not necessary, or after the operation, I would be happy to pass on a few pointers based on my own experience.
Good luck.
Alan
Thanks Alan. That's so encouraging!My wife of 43 years is also a Filipina and we spent the winter there this year at our cottage there by the sea on Mindanao. Agusan del Norte. Spent most time between Butuan and Carmen.
Still hoping and praying we can visit next winter.
Would appreciate any pointers etc.
Thank you
Peter
Which type of valve did you choose?
I opted for the cow made Edwards Resilia. A lot of the option was to do the best I could for the surgeon. I was told (?online?) that the valve would cost £28,000 but in fact it cost about £6,000. It has been trouble free for four years. Nowadays I believe it comes with the option to add a TAVi if the client outlives the valve.
Sooty
I had one of these 7 weeks ago. It’s over and done with in about 45 minutes. If there is a blockage that is restricting blood flow they will insert a stent to open that artery. I had 5 blockages including one on the main LAD, but none were quite blocked enough to stent. So this does not end up on a stent unless you need one. If you do, it’s painless and yes you can have calming medication, I think 95% of people do.
Don’t worry too much. It’s 2024 and fast and safe
Hello, yes they gave me valium, they took one look at me and said " get the box of tricks out", they also asked what music i liked, i said anything. So as they started, i was away with the fairies whilst BonJovi was playing Living on a prayer!! i didnt need any stents after all
Thanks for that!!
I was really anxious before the procedure. They gave sedation via the canula remotely, no pills! It was all amazingly relaxed, no pain or discomfort at all. At one point my BP dropped and I felt a bit faint, again a remote shot of something brought me straight back, all the time the medics were working away, fantastic. It was much less discomfort than a dental filling, there really isn't anything to worry about. Good luck.
Hi Gooner1947. I had a coronary angiogram where a 95% blocked right coronary artery was found and I was stented immediately. They will only stent if a blockage is found and is, I believe, more than about 75/80% blocked. Before the procedure, I was told the coronary angiogram was just to have a look which sounds like your case. I’ve had another coronary angiogram since to check everything ok - no further stent needed and declared fit. I didn’t have any calming medication. I was 55 when stent fitted. Had I not gone through the procedure, doubt I’d be writing this now. You will be fine and it’s just an hour of your life possibly to extend it. I am sure they will help you with your fears if you make sure you let them know. Hope it all goes well for you.
My aortic stenosis lead to an aortic valve replacement, now one month post Op and other than AFib I am doing really well. The CT Angiogram I found was really simple, in a calming setting. One of the main issues with aortic stenosis is it is often undiagnosed, like you I was breathless especially when walking up inclines, much better they identify it now and can keep an eye on your condition. Very best of luck.
Thank you for that. Yes my breathlessness walking up inclines is worse. How is your breathlessness now? If that could be solved I'd be a happy man.
It seems as though I'll have to wait 3 months for the coronary angiogram.
After you had the angiogram and they decided to replace valve (sounds a complicated operation) what sort of timescales were you looking at?
Hopefully it won't come to that but just want to get my head around things.
How are you feeling now my friend? Hope all OK.
Peter
As far as I understand it the echocardiogram checked the level of stenosis in the valve and the CT angiogram checked the health of heart and arteries . My stenosis was due to a bicuspid valve (the most common congenital heart condition) my heart and arteries were fine. The results for the CT Angiogram took four months, I expect the time line varies in different areas/ hospitals. The valve replacement is major surgery but I would suggest not to start worrying about that before you know that is what you are heading for. If you do need a valve replaced then you can find out the very high success rate the Op has. I would just suggest you chase for appointments and chase for results, sadly the system is swamped and waiting lists are long. The results of tests will enable them to prioritise your treatment appropriately. Very best of luck.
Hi I was 75 and had a TAVI aortic valve replacement Last year I have problems lying down without moving Told them and had extra sedation I was fine You have to lie flat for 3 hours after op and that was bad I should have asked them for something for that too Home the next day A year later valve is working perfectly and should last me 20years which should see me out
You can't sit up.im afraid!! You have to lie on your back. I have a curved back and also herniated discs so its very painful to lie on my back You can ask for pillows to put under your feet. The sedation did not work for me and I've had this procedure twice. It might work for you though. I wish you all the luck.
I have severe spinal problems which stop me from lying flat. Formy angiograms I had to so they put a lot of pillows under my legs and neck until I could cope with the position. I was also given a sedative. They areused to treating people with other problems and the procedure itself is nothing to worry about. 10 minutes after it I was in recovery with a pressure bandage on my wrist and having tea and toast. I went in for 9 am and was home an hour away by 1.30pm.
Thank you so so much. I feel so reassured now.
It was awkward and took a while to get me in a position that didn't re ally hurt . I've had to lie on my side for 20 years but they were patient and persevered. The only thing I Objected to was that they wouldn't let me watch on the screens. It's done to check for blockages. They will only fit stents if blood flow is compromised. AT my first one, after a heart attack I had two stents fitted. The procedure didn't bother me at all. Then i Had to go back a month later to check on a problem they thought they'd seen. STrangely that time I was really nervous but hey were great. They did find two blockages , 64% blocked but blood was flowing fine so I didn't get stents.- just tablets.
Thank you. You're helping me feel much better about it all
I was 75 when moderate stenosis was diagnosed with forecast of surgery in 3/4 years. pacemaker fitted at this stage. In 6 months was rechecked found to be severe and a tissue valve inserted by TAVI. Brilliant experience discharged after 3 days. No post hospital pain killers. No problems since and now on 2 yearly reviews. The replacement hip since ( unconnected) much longer recovery !!! PLH