Diagnosis timeline help

[Betsy2023]

Hi thank you for letting me join your forum. My Husband died aged 53 of acute myocarditis, having tried to get answers from the NHS as why all the tests he had been having prior to this nothing was coming back as a cause for this. However, I have now found out that after his heart monitor on 9th August that year, the hospital had diagnosed paroxysmal atrial fibrillation and atrial tachycardia. The letter from our hospital was dated 21st October and my husband died in his sleep 5 days later not knowing about this. My question is, is this length from tests normal and why did they not contact him about this earlier.

Many thanks for reading

Betsy

[Happyrosie]

my suggestion is that you contact the Patient Advisory Liaison Service at the hospital he was treated.

But my understanding of atrial fib etc is that it isn’t very serious, though I could be wrong. This is what advice the NHS publishes on its website:

“Atrial fibrillation is not usually life threatening, but it can be uncomfortable and often requires treatment”

You could contact the cardiac nurses at the BHF and they would know far better than I would.

[HHH2017]

Hi Betsy, Im so sorry to hear of the loss of your hubby. I had acute myopericarditis and was very ill but am obviously lucky to be still here.

Many of us on here from posts Ive read, do find that letters, results, appointments are taking too long to come through these days. BUT often people also say 'but if its urgent you will/do hear quickly'

If the A fib was present at the same time as the myocarditis they should definitely noticed and treated it!

Can I ask if hubby was in hospital with his myocarditis?

As per the previous reply do talk to PALS at the hospital. You can do things like arrange a meeting and go through the timeline, request his notes etc They will support you.

A number for the BHF nurses is

03003303311

Wishing you good luck & some answers.

[Betsy2023 in reply to HHH2017]

thanks for your reply, no he was at home the myocartidis was picked up by the coroner he literally died in his sleep after being in work all day

[HHH2017 in reply to Betsy2023]

I'm truly sorry to hear this Betsy. Definitely sounds like you need answers. PALS at your hospital should be very supportive & helpful.

[maggie80]

I'm so sorry your husband passed away. It's heart breaking.

[Plum53]

Hi, so sad to read your post so very sorry for your loss.

[polenta]

So sorry for the loss of your husband, I cant even imagine how you and your family are feeling.