Surgery options- Aortic Stenosis + aortic coarctation+ Patent Ductus in a 9 month old

[Sushil1786]

Hi, Glad to be a part of this community. My 9 month daughter has been diagnosed with a congenital heart disease. We took her to A&E for a chest infection and breathing issue and got diagnosed with a heart murmur associated with Aortic stenosis( valve is unicuspid), Coarctation of arteries and a petant ductus. This seems to be very rare with all 3 together and we are looking for guidance or case studies where people had one or all these conditions treated? We are currently refered to the Southhampton hospital and have a meeting with them this Friday. May I know what surgery options are available for Infants for stenosis ? I am interested in Ozaki though not sure if the hospital has expertise to do it. Also hows the recovery and life after suregery for kids ?

Any advise is greatly appreciated.

Thanks

S

[Digger0]

I can't help re guidance but these 2 links might help. Write your questions down before you go so you won't forget any. uhs.nhs.uk/Media/UHS-websit... and lhm.org.uk/preparation-for-... At the Liverpool Heart and Chest hospital & Alderhey the surgeons who operate on the youngsters make 3D hearts that exactly match each child so they can assess what they will do.

[cappachina]

I have no knowledge of this condition but can say that my friends granddaughter had major heart surgery at under a year old and is now a healthly teenager leading a normal life Is there a forum for parents children needing heart surgery you might find someone on there The BHF nurses you can ring may be helpful and able to give you info too