TAA and still waiting to see vascular consultant.

[Safeangel]

Here I am still waiting to get an appointment to see vascular consultant at Liverpool heart and chest hospital. I have rang so many times and no joy.

I have emailed the consultant twice and finally got a reply saying he would sort out an appointment in the near future (not sure what that means!!)

I was seen in March this year measured at 4.8cm (last year measured 4.4cm and I also have BAV at my local hospital who don't deal with TAA hence referred to Liverpool.

I did see my cardiologist in June for the BAV and he said he would organise another scan for 6 months time. But think that would be from June when I saw him so that would be December (that would then make it 9 months from last scan)

I can't help worrying that it is growing fast and no one seems to be concerned.

I'm tired of fighting the system and not even knowing if my children could be at risk (genetics) I've had no information given to me.

I've only seen the heart cardiologist once since BAV was discovered in 2018 (just before COVID) as it was always assumed I had a heart murmur from birth.

Sorry for long post I just needed a sounding board to get it off my chest 🙂