sleep study appointment out of the bl... - British Heart Fou...

British Heart Foundation

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sleep study appointment out of the blue - what to expect?

4 Replies

hello

I was told it would be 40 weeks before I got to see the sleep consultant but I go a letter today saying I have a “click and collect” appointment mid April THIS YEAR!

this is to collect equipment for use overnight as requested by the consultant.

Very very happy and surprised but a little concerned they brought it so much forward and going straight to a overnight test. Is this normal? Why would they do this?

The only thing I can think is when I realised my GP’s admin had not uploaded online my recent angiogram report diagnosing my congenital heart defect as affecting blood flow they realised they hadn’t updated the “e referral” information either so the sleep consultant would not know of my heart condition. They said would update the consultant But to be belt and braces I emailed the angiogram report directly to the consultant’s secretary just to ensure they had my full medical history. What I didn’t know is when GP sends an e referral it’s accompanied by a list of ailments and meds since birth!!!!

I am utterly grateful the sleep people took a second look at my records. I mean at least it’s a start to have the overnight study. Sod’s Law it won’t show the lowest I can go down to (low 80’s) Wonder if worth providing screen shots of Apple Watch data? Can’t do any harm!

What can I expect from the test and what usually happens after? If there is an issue can a one overnight study pick it up? I’d prefer a bit longer.

thanks in advance! (I have posted in sleep matters forum but thought would ask here re people with both issues - apologises for duplication).

4 Replies

Hello :-)

I don't have the answers to what you want to know others will though

I do think you pushing things and well done could have helped speed things up but as I have said before I always look out for you and am following your journey and hoping you get the right diagnosis and treatment soon and with your determination I am sure you will you are a strong lady :-) x

in reply to

thank you that’s very kind to be interested, I’ve been quite down as trying a med i tried before and it’s not very nice to me, so it always a positive when get some progress. Thanks for the support ❤️

in reply to

Hello :-)

I am so sorry you have been feeling down I hope you feel a little better now :-)

I get what you mean with meds I had a week of one not for my heart but something else and I tried it twice it really did not agree with me and even though I do try and tolerate meds I had to tell them this one was impossible and it was :-)

Hope either you are not on the meds now or things have settled down :-) x

thank you, it sounds like mine in comparison may be a much simpler version as it will be at home although don’t know full details. Just that I have appointment to collect “equipment”.

Got it! they won’t be looking at heart. I felt best to share heart stuff because it causes blood flow restriction. I was thinking might be a contributing factor to my low blood oxygen on occasion.

I’m glad though at least will be getting started soon. 😊

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