hi there my husband has been diagnosed with cardiovascular disease and bone cancer of the right femur he’s been suffering since august last year and nobody seemed to take him seriously they did his angiogram and discovered he has coronary heart disease he’s got a bulge in his large intestine which is blocking his bowel he’s really going through it at the minute and he’s only 53 we’re just looking for advice and support he’s only been put on morphine because his gp said he can’t have anything else until his mdt team have a meeting so where in the dark and just waiting but he’s in chronic pain thanks for taking the time
Nat xx
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Natsteveo
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hi, I’m really sorry to hear what you are going through at the minute at this difficult time. I’m sorry I can’t help with your questions but just wanted to say keep positive, take each day by day, try not to dwell on the future as it is something out of our control. I hope you get the answers you are looking for x
That sounds really, really tough. I can't add much of practical help, but I still get femur pain from a severe break 10 years ago. I've tried many non-drug methods to help with pain in my hip, knee and thigh. Ice packs and heat pads, and alternating ice oacks and heat pads were some help, and TENS machines were very good for a break (you can buy them in chemists and dont interfere with any medical treatment). Otherwise, I find distractions like istening to Radio4 Extra through the night and meditation can sometimes help when I'm finding my various health problems overwhelming.
Are you getting support from Macmillan? They were very helpful when my Mum had cancer.
You may be in the dark but we are not living in the dark ages. So your husbands GP has an obligation to help your husband get pain relief while he waits for decisions to be made about the medical way forward. he cannot turn his back on your husband and pass the buck on to someone else.I think you are going to have to spell this out and insist on some action .I am not a medic but i do know pain relief is a right to which your husband is entitled. Do also consult the Macmillian nurses as wisperit advised.
exactly my point it’s like they are all passing the book but nobody is willing to help him with medication and it’s cruel to leave him so long without anything they said they want to put him on statins and aspirin but want to wait for the mdt meeting ???? This is unbearable to watch your husband be in excruciating pain and I feel nobody is helping him it’s awful thanks for this means a lot x
Hi Natsteveo - there must be many hundreds of members here, if not thousands, who read your post and not feel able to answer with specific advicel yet are 100 per cent behind you in support. I'm sending you a photo that i took on Tuesday, Valentines Day, and my prayer is that the love be converted to pain relief.
Please let us all know how you and your husband are managing in the days and weeks ahead. ❤️
I’m not a doctor either but as others have advised you your husband cannot be left in such pain. His doctor must be challenged . Make a nuisance of yourself if you have to and don’t feel guilty. All the very best. Keep us posted
hes back at drs today and I’m going in with him this time as they don’t let you after covid do they but I’m going in with him today and I’m not going to be quiet either thankyou for this xxx
Hi Nat. Your hubby having an MDT meeting is good news in a way as it means lots of different teams of doctors are looking at the best courses of treatment and the timescales etc. they normally happen every two weeks and as you have mentioned a cancer diagnosis I imagine that is going to be the priority condition at the moment. If the holding pain relief while all these plans are being done is wearing off. Call GP he maybe able to increase or add to this temporarily or visit A & E. But take heart these meetings mean he is not being sidelined or forgotten.
I do know they taking it seriously it’s just him suffering and the waiting game even his gp has said the hospital has left him too. Long that the hospital should of taken him seriously in august last year when he went thanks for this
Just to say CAD is probably not the urgent issue in your husbands situation, CAD does not give chronic pain ( I may be wrong ) but I have had CAD for years and never needed Pain Medication. The MDT will sort out the priorities and will give you a clear way forward. I am pretty sure you and your husband will be invited to discuss the options to secure your future needs. I do know in a MDT meetings someone will lead and then take opinions from the other specialist who will have gone through all the tests and reports, before coming to any conclusions.
Not much help I know just trying to lay out what will be happening in the background.
thanks so much I think it’s the not knowing isn’t it that’s the worst his pain believe it or not is coming from the ‘bulge’ in his large intestines that’s causing his chronic pain the gp said once the open the blockage and get his blood flowing properly that pain will disappear so hoping they get him in soon so they can give him some relief and get his treatment started this has actually reassured us because we didn’t know about mdt team thanks for this
So sorry to hear what your husband and you are going through. There’s absolutely no excuse for anyone to be in pain these days, contact your Gp your local Marie Curie I’m not sure which part of the country you live in, some areas you can contact district nurses and or your local hospice team directly for help and advice. If bone pain is the main source of discomfort the morphine may not be a high enough strength or additional pain relief for specific type of pain might be required.
I know your world will be spinning right now and it’s hard to draw on your reserves your husband is entitled not to be in pain and his Gp has a duty of care
Please let us know how you get on, the folks on here are so supportive
hi. I’m so sorry for what you and your husband are going through. I was put on liquid morphine and found it to only to offer short term relief. My gp then switched it slow release morphine capsules which were much better. Maybe you could try it. Best wishes.
An opiate like morphine will slow down bowel transit making any blockage worse. I would personally think the bowel problem is the most urgent thing in the short term and the one likely to be causing the most pain. I would be getting him to A&E and refuse to leave until something had been done. The meeting will hopefully sort out his treatment but he cannot be left in pain like that. Do contact McMillan too.
That is totally ridiculous and nobody should be left in chronic pain at this moment in time. Your GP has a duty to do all in his power to help his patients with their problems and fail to see what a multi discplinary team can disagree with. Get back on to him and I wish you both all the very best going forward.
So sorry that your husband (and you too) are having such a hard time of it. He should not be in pain though and you need to speak to your GP again about this. Have you tried contacting McMillan who nay be able to offer advice and support? Sorry I can't be of any more help but wish you both all the very best.
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